old thread about this trial https://forums.phoenixrising.me/threads/a-randomized-placebo-controlled-double-blinded-trial-of-duloxetine.35478/
they carefully picked 60 patients out of 600 over 6 years :rolleyes:
Tweet by Karl Lauterbach (famous German politician and prof. of health economics and epidemiology) about this article https://en.wikipedia.org/wiki/Karl_Lauterbach
I didn't have these symptoms in my first years of ME/CFS (sudden "mild" onset after flu-like illness) When these symptoms begun it was difficult to put them into words. Today sensory oversensitivities are one of my worst symptoms.
But it is an interesting observation you mention because severe...
The wikipedia article sounds like an advertisement. :eek:
Maybe someone could also put in Edzard Ernst's statement? https://edzardernst.com/2020/06/the-lightning-process-implausible-unproven-hyped-and-expensive/
and this sentence is misleading and abbreviated:
"The approach has raised some...
German article: Barely enough air to breathe: a family tells about their Corona odyssey
https://www.nordbayern.de/region/lauf/kaum-luft-zum-atmen-eine-familie-erzahlt-von-ihrer-corona-odyssee-1.10199632
German article: Some Covid-19 patients just don't get better https://krautreporter.de/3353-manche-covid-19-kranke-werden-einfach-nicht-gesund?shared=6dcc9c26-803f-48b3-ad8d-f5d7cba84d53&utm_campaign=share-url-35346-article-3353&utm_source=twitter.com
google...
sustained arousal is contrary to the (sometimes claimed) burned out HPA axis
mindfulness is contrary to the stop technic of the Lightning Process (There was a Norwegian article in which a doctor defended LP even though she herself claimed to have recovered through...
"Belgian pandemic expert Peter Piot helped discover the Ebola virus, and is currently advising the EU on the COVID-19 pandemic. He is also a survivor of the disease, and found it much worse than he had expected."...
Scary how they changed their language to make an esoteric quack method look like a slight modification of what is seen as established methods. They use words like stress management technic and CBT-based, NLP is droped and sometimes even LP.
A norwegian blog (I read with google translate) made the point that we don't know much about rates of spontaneous recovery in the first years of ME/CFS. This point together with the fact that Landmark wants to treat newly ill patients and that there is no long-term control group, not even an...
The introduction does not really say what it is about. Maybe it's just about over-medicalisation?
over-medicalisation advocats often seem not to take ME/CFS seriously.
This book and the author are quite popular in the German ME/CFS community. The problem is that it is a mix of good with questionable content. The author shares Judy M.'s views on ME/CFS. (She does not share Judy M.'s views on Corona, I am quite sure.)
"What happens once you recover from COVID-19? Are you better straight away? Maybe… but maybe not. Post Viral Fatigue Syndrome (PVFS) can be a debilitating illness and there is a growing amount of evidence that this novel coronavirus may be responsible for it, even after only mild symptoms during...
"Paul Garner: For 7 weeks I have been through a roller coaster of ill health, extreme emotions, and utter exhaustion
May 5, 2020
Paul Garner, professor of infectious diseases at Liverpool School of Tropical Medicine, discusses his experience of having covid-19"...
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