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I should add that I was so sick it felt like I not only had cancer but meningitis, nasty flu on top and more.

My severe onset ME and the months following felt like the last month of cancer. I felt terminally ill. I often felt my body was putting me through chemotherapy. There must be some similar pathway or something very close to it or like what happens in chemotherapy. @Philipp I only listened to a...

@Cinders66 I did have two jobs (full-time + part-time) off and on over the years before ME hit. I found I could only do it for awhile. I would get lots of colds close together and that was always a sign to me I was getting run down and had to give the second job away.

Great. I thought it was end of June and had to race to find this thread today, but see it is open to the end of July.

I liked your post in agreement about the high property and rental prices but hope of course no one dies from what sounds like a terrible flu. Property and rental are high where I am too. I had to move to a smaller place last year, very concerning.

Or a follow-up call by a nurse to record how patients tolerated the vaccine.

I think there should be a questionnaire given to each patient to fill out after a vaccination and any reactions to the vaccine recorded on the questionnaire and returned after a few weeks or month? We might get a better picture of what is happening symptom wise, whether mild, severe or no...

Same here with the neck. I prefer to lay down rather than sit up but when I do sit up in bed my neck doesn't feel supported. Years ago when my ME was more moderate I tried doing about 3-4 minutes of exercises to strengthen the neck area. Just 3-4 repetitions. I was amazed how just those few...

@Dechi I had the same problem with my hands and arms when I used a stand for my laptop a few years ago. I had to stop using the stand. Laptop is back on my lap. This new laptop I now have doesn't seem to get as hot as the previous one which is a bonus. Still, I probably shouldn't be having it my...

I spoke with someone there earlier this year by email. I'll email this afternoon and see if they can give us an idea of how much longer the wait will be. It sure has been an unexpected long wait.

Excuse my basic comment, sore eyes and head today. I personally think the gesture would be laughed at because it does have a strangeness about it. But would just like to add that I felt the love and care (as I am sure everyone else did) in Janet Dafoe as she was talking and understand. I...

@Wonko @Andy H @arewenearlythereyet @Skycloud @Diluted-biscuit Thank you all for your gentle replies. I felt quite sick after posting yesterday worried I had upset anyone but you were all very kind in your responses, thanks so much. :hug:

Some do suffer psychologically. I just don't think we need to have a laugh at them as people with ME. I'm glad for you that it doesn't bother you @Wonko

I hope men/women with baldness are not reading this thread. Let's not make fun of people with baldness just because have gotten more funding. They must suffer a lot of anguish when losing their hair. Its so easy to laugh and not realise the psychological harm that can be done. We are not all...

Passed three quarters of the way now. Made my second out of three donations today. Thanks.

This is where I believe my ME began. I caught a vaginal infection when young (chlamydia trachomatis) I was never the same afterwards. This infection changed the vaginal microbiome and never returned to normal. I suspect the antibiotic pessary could have caused the changed microbiome (?). I...

@Hutan Do you mean that we can purchase it online. I checked whether I could get it over the counter last year and was told to order it online from Australia. I didn't follow through though. I don't have raised CRP though. Whether that makes a difference for trying it I don't know. I need to...

I'm not up to doing the questionnaire yet but will when I have rested more in the weekend. Is there a time frame for doing it or cut off date?

It could be a big block or a small block of houses. If a block is as large as 20 houses long before a road, I would half that amount and call 10 houses 1 block.

A few days late with this but I have donated today and I will be able to do it 2 more times this month. Thanks.