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    BBC Newsbeat: M.E. And Me - documentary available from Tuesday 8th May, 6am

    I think it's great! Really positive step I think. Although I did find it heartbreaking to watch :( I think we need to get images of people who are suffering out there so that the general population can visualise what ME is first. Any campaign needs this as a base - people have got to CARE...
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    Guardian piece on ME by Nick Duerden, mentions PACE 'controversy', includes quote from Chalder. Bit of a nothing article.

    To be honest, I'm not sure the Guardian will have thought that much about it. I think the publishers of the book the author have written will have pitched his article, the Guardian editor will have looked at the credentials of the writer and accepted it. I think the more genuine stories there...
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    Guardian piece on ME by Nick Duerden, mentions PACE 'controversy', includes quote from Chalder. Bit of a nothing article.

    Oh I think positive on the whole. A well respected, successful, MALE journalist gets ill with CFS and is writing about it. Can't be a bad thing, I generally think that the more of us there are speaking out, even if not 100% informed about PACE etc., the better. Of course, I might be wrong. I...
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    David Tuller - Trial By Error: Goodbye, Australia; and Two Updates

    Btw, I feel like by posting that link above I may have made myself look like one of those mythical militant "activist" patients, scanning the internet looking to expose anyone whose research I don't like. I just want to explain... I searched around for more information about this study because...
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    David Tuller - Trial By Error: Goodbye, Australia; and Two Updates

    The request for volunteers for the shopping bag study looks to be still up on a helpfulpeeps.com message board https://www.helpfulpeeps.com/posts/376999167 (helpfulpeeps is a website that connects volunteers with people/projects that may need help. Seems a strange place to advertise for...
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    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    It's like investigating how people with diabetes react when you offer them sugar compared with how people without diabetes react when you offer them sugar. You'll find differences but it will tell you nothing of use. A serious confusion of cause and effect. "Chronic Fatigue Syndrome/Myalgic...
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    The ME Show

    @Gary Burgess this sounds good. I thought you were great in your recent radio interviews - you obviously have a natural talent for this kind of thing (and you obviously have lots of experience). You came across so well. I'll give this a listen asap :)
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    MorEPA

    Hi. I tried EPA years ago on the advice of an acupuncturist. I bought expensive good quality stuff. It didn't have any effect so I gradually increased the dose to quite a high level. Still no effect (other than a fishy taste). I tried again a couple of years ago on the advice of a nutritionist...
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    Gupta amygdala training program for ME/CFS, FM and Long Covid - news and discussion

    Yep! The thing I find frustrating is that if they were upfront, I'd actually agree with a lot of what they say. I do think it's possible to live well and with positivity despite having a physical illness. I just can't abide by them marketing it as a cure for the illness itself. I actually...
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    Gupta amygdala training program for ME/CFS, FM and Long Covid - news and discussion

    I just read that Lissa Rankin article :( It seems to me that 'healing' is a word that has a lot of different interpretations and Lissa Rankin seems to be very good at exploiting this. Cure is a relatively stable word because it means absence of disease, which is measurable. Healing is more of...
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    Gupta amygdala training program for ME/CFS, FM and Long Covid - news and discussion

    I think for some people it's very comforting to believe that positive thinking shields you from suffering. Its kind of a protection strategy - 'it won't happen to me because I know how to think positive and the universe gives us what we ask from it' (or similar). Its hard for people to accept...
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    Gupta amygdala training program for ME/CFS, FM and Long Covid - news and discussion

    I'm so glad that this has been upheld by Advertising Standards. I looked into Gupta a few years into my illness and didn't go for it but I'm still on their mailing list. I've had some emails recently and noticed how he's now talking about mindfulness. It really frustrates me because I actually...
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