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@Trish thank you for the articles. The first one I have but I'll include the second one too. I have learned alot recently So I am hoping my PCP will want to update his knowledge so we can discuss what changes can be made etc. I feel like I'm on too many meds with the only change being a very...

I have been reading (as much as I'm able) all your responses and it is overwhelming for me. I do not have enough cognitive function to be able to read everything and process it all. So I don't know the scope of PACE. I do know my ME has only gotten worse. I would like to know if there is a...

Wish me luck, I have to go to the store....:confused: I'm out of water and bread! I need that stamina I don't have right now...:nailbiting: :oops: Talk soon. :hug::hug:

Surprise surprise....right?

Me too!!! :dead:

@Dechi, I know how hard it was for you raising kids alone, working, school....etc. I too did the same. Did anyone else blame themselves? Ask why can so many people do this and I feel like I can't....I must be lazy. No self esteem....blame ourselves because we new nothing about ME. :oops::bag:

This is an interesting blog everyone has a different past in such different ways before ME. Thanks @Cinders66 . I worked 12hr shifts for 22years but not without extreme struggle. I didn't understand my difficulty was ME of course. Through college (late in life age 26-34)I had to work so hard...

You know what @Andy?! Of course I want to be a part of this awareness...right?! Everything I try to do won't work for me! I tried to buy t-shirts...nope. I tried to share the ME article above...nope. I get so exausted. I'm sure it's me, Mush brain and computer illiterate. Like many, why I had...

I know that Facebook reaches alot of people but I don't trust it anymore. I'm not sure what to think about this. Patient confidentiality is supposed to be a huge criteria! When I was working in the health field, we were not aloud to discuss any patients outside of the hospital. Only in our...

@Webdog and everybody here, I'm so tired, I don't even know what to say. I want to march, advocate. So discouraging. I would share my story in a heartbeat! Maybe write a letter to our president! In 1994 I received a personal letter from President Clinton congratulating me on graduating! Truth...

Reading all these responses are confusing for me. I just gave in and put an order in for a wheelchair. I came in this blog right when I saw it. I have OI which seems to be getting worse as years go by. So I realize to have any kind of life I need a chair. I just don't know what type to get...