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Well, this is quite a headline... https://www.dailymail.co.uk/health/article-6810393/Top-chronic-fatigue-researcher-QUITS-online-trolls-hostile.html Well, that's better than the Reuters article already... Whoops. This thread has more vitriol in it but I didn't see the point in...

Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much A biopsychosocial camp has contended since the 1990s that regardless of how it starts, people with ME/CFS dig themselves into a hole with their attitudes and behaviors, leading to physical deconditioning (sort of the...

I'm not exactly sure this is the right subforum for this but it sure doesn't seem like it should go in the biomedical area. Based on a quick skim it seems like a sort of general wellness guide wrapped up in a sort of systems biology packaging, with something like CBT and/or NLP (lots of stuff...

It's been done. Wish I could remember where & by who, but it was a real publication, as in, not just a blog. Might've been Trine Tsouderos, who told me that, at that time, the first thing she did in the morning was look at ME/CFS Forums. I always thought forums should've been members-only from...

Good talk. Covered what for him are the most egregious issues, as far as the statistics, and quite a few other points as well. Light turnout, they had had 75 RSVPs but I think there were maybe 25 people there. Don't think there were any other ME peeps, but not completely sure. Students mostly...

Well, as it turns out I'm going to head up there for this. Don't know if they permit recording, but if they do I will do my best.

Unfortunately I just saw this, and as it's happening in 12 hours I won't be able to get myself there. If this was posted, I didn't see it...here or anywhere else, until just now. I'm guessing this won't be recorded, but who knows. Wish I could go to point out the webpage from Oxford, among other...

I was/am a big/huge fan of Christopher Hitchens. I never had much confidence that he couldn't be talked into seeing things Wessely's way. A couple of things he wrote here or there about his friendship with Francis Collins might've had something to do with it, I got the sense that when it came to...

That someone was Brian Walitt, and Nath approved it. http://mecfsfromme.blogspot.com/2017/01/walitt-invited-shorter-and-nath.html

Thank you...unfortunately our struggles with Sir Simon, or, to be more specific, the results of the policies informed by his published research, have helped lead to a volume of human suffering so unnecessary it defies description. After a point one does start to question how it doesn't morph...

I hope you're right, but I would not underestimate him. I am not 100% on this but when I first saw this piece I wondered if it was some kind of blog platform attached to Forbes (as opposed to the magazine proper), and I saw a tweet somewhere, maybe by Jen Brea, that said this was in fact the...

Considering they couldn't even keep the older piece in Counterpunch for more than a couple of days...yes, it's possible they withdrew it, but why would they have done that? Regardless of any connection to Spiked, if I were Simon, and I wanted a journalist to do something sympathetic...is this...

Amazing how the perpetually-hostile (towards ME) "Science-Based Medicine" blog was disgusted by PACE enough to come out hard against it--almost a year ago--and AfME can't even bring themselves to do so publicly. Absolutely amazing.

Even the 'innocently' uninformed are never going to get it, as far as I can see, until either we have evidence considered far more convincing than what currently exists (in terms of satisfying medical science), or the term 'fatigue' is replaced by 'deathlike paralysis.'

Well said. I just keep thinking that if I was of the mindset that this is not a _____ illness--and I think we all know too many people who think that, so it's not exactly random speculation--someone who thinks that way doesn't find anything in this article that will affect their own biases. And...

..." even the mildest activity, like brushing your teeth, can lead to a debilitating fatigue, the core symptom of the disease." I don't find this article particularly helpful. It consists of most of the same generalities that have been applied for decades, which make sense for a 'subjective'...