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  1. rvallee

    Diagnosis and Management of Long COVID in Children and Adolescents: An Update after 5 Years of Clinical and Research Experience - Nadendla et al, 2025

    They always mean stuff like CBT when they say that, or any random "mind-body" woo. Doesn't matter that it's all false, in fact it's entirely the point: there is no need to do anything more, we already got this. This is the main reason why pseudoscience is unacceptable, it stops all progress...
  2. rvallee

    Review Cost effectiveness of non-pharmacological interventions for fatigue in patients with long-term conditions: a systematic literature review, 2025 Davis+

    The main way in which the biological analog "computer" differs from the digital kind: it can happily divide by zero and find zero problem with being stuck in an infinite loop. It just keeps looping and looping and looping forever and ever.
  3. rvallee

    Review Cost effectiveness of non-pharmacological interventions for fatigue in patients with long-term conditions: a systematic literature review, 2025 Davis+

    "Systematic". I guess that's a common synonym for cherry-picking now. The fact that almost every review and analysis either systematically excludes over 95% of studies, or marks them down as too low quality to bother comparing, never bothers anyone, they always conclude the same: "Do more of...
  4. rvallee

    […] Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice, 2025, Jayadeva & Lupton

    The only reliable expertise to be found is still limited to patient communities. Not all communities are good at it, in fact many are awful, but the only sources of reliable information with expert-level knowledge are in patient communities. There is not a single health care professional out...
  5. rvallee

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    A word of advice from someone who knows a lot about politics: don't use their language. The plan doesn't aim to boost or improve anything. Never privilege a lie, always call them out when you are dealing with this kind of systematic obfuscation and dishonorable lying. And do not give credit for...
  6. rvallee

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Well, this could have been an email poop emoji. A delivery plan that isn't a plan and delivers nothing. Such ironic projection. They keep falsely saying those things about us, how we don't even try, and yet it's them who never bother trying. I think there's a typo here. It should read "GPs to...
  7. rvallee

    Video : Dr. Laurel Crosby on Rare Disease Innovation at Stanford Genome Technology Center, 2025

    The overlap between doctors and patients even feels a bit fantastic to me. I keep hearing about this "patient-doctor relationship" and have no idea what it even means. All my life doctors have been no different than any other bureaucrat, they do their thing, for their employer, and that thing...
  8. rvallee

    Diagnosis and Management of Long COVID in Children and Adolescents: An Update after 5 Years of Clinical and Research Experience - Nadendla et al, 2025

    No one has managed effective management, for any population of any age. So how can they say that? Obviously if they could manage symptom relief and functional improvement, it would be great, and it's a nice goal, but this is not something anyone has achieved, and the lack of achievement has been...
  9. rvallee

    Sarah-Jayne Lewis - Coroner's report (trigger warning)

    For sure I wouldn't want such clinics to open here. A few have, as best I can tell on the junk BPS model, they only take Long Covid, and although I've only read a few comments on them, they were all very negative. No clinics are better than this, because when it comes time to do something...
  10. rvallee

    Single-cell transcriptomic and chromatin dynamics of the human brain in PTSD, 2025, Hwang et al.

    I can't really see much validity to the idea that PTSD, which requires intensely traumatic events, can be unified this way. Of course not everyone will react the same way to the same intensely traumatic events, but those events are so unique that they make up a category as homogeneous as car...
  11. rvallee

    Addressing The Diagnostic Void Faced By Patients With Deteriorative Symptoms

    I gotta say that there is something funny about arguing this when we look at how the medical profession is handling chronic illness and absolutely nothing of what you claim is happening. Or it's happening only when it comes to being skeptical about its existence and anything that proves it. On...
  12. rvallee

    Article: Chronic pain sufferers find relief through UK-first (virtual reality)treatment

    I assumed it would be ridiculous. It's so much dumber than I thought it would be. But the takeaway is that I should change my assumptions and just expect even worse. Even if the idea had the tiniest bit of merit, people can't keep themselves distracted all the time. Do they think people living...
  13. rvallee

    Associations between emotional awareness deficits and somatic symptoms in a community and clinical populations: a cross-sectional study 2025 Kang+

    No, it may not. This is just ridiculous. You are in angels and fairies territory here. This has nothing to do with some vague idea of whatever "deficits in emotional awareness" even mean. It's just random nonsense. As is tradition, they take a correlation and make it a specific attribution...
  14. rvallee

    NL: UWV Dutch Employee Insurance Agency ao disability

    And yet, objectifiability is not necessary. There are diseases that aren't denied or discriminated where objective assessment is still not possible, so it's all very arbitrary. Especially as the claim is generally that objective diagnoses are not necessary, it's functional assessment that is...
  15. rvallee

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    This is really the fundamental problem underneath the insane psychosomatic project, and the massive failure that is so-called evidence-based medicine: judge us not by our outcomes, but by our intentions, and only by our intentions. Also: how dare you judge us? Worship us. Agree with us, always...
  16. rvallee

    Functional cognitive disorder in Alzheimer's disease 2025 Cabreira, Stone, Carson et al

    Everything is conversion disorder, if you don't think about it. Oddly enough, they didn't invoke the (formerly?) fashionable concept of a "functional overlay". I guess it's because they are discussing a respected disease, but they still loudly hint at thinking of this as ye olde conversion...
  17. rvallee

    Functional cognitive disorder in Alzheimer's disease 2025 Cabreira, Stone, Carson et al

    This offensive junk is far more dangerous than whatever RFK Jr is doing as health secretary in the US, because although it's just as wrong and absurd, it's taken seriously by the medical profession, making it more impactful. Absolute waste of money for a research fund that is supposed to be...
  18. rvallee

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    The fact that they call this "evidence-based medicine" is such a sick joke. Why are they potentially helpful? Based on what? Not evidence, that's for sure. In fact the evidence is clear that this is useless. Literally decades of research. It's widely acknowledged that there are no treatments for...
  19. rvallee

    Sarah-Jayne Lewis - Coroner's report (trigger warning)

    Actually I was wondering if anyone here has an inside contact who could make it clear that the people behind the plan are at least aware of it and perhaps could be made to at the very least mention it. Not that I expect anything to change, but it has to be made as hard as possible for anyone to...
  20. rvallee

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    Wow. This is the modern equivalent of investing in rain dancers instead of water infrastructure to deal with chronic droughts. It has zero chance of achieving any of what they claim to, absolutely ridiculous nonsense. It may look like they're saving a bundle, but they're actually spending money...
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