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  1. Andy

    Persistent somatic symptom related stigmatisation by healthcare professionals: A systematic review... 2023 McGhie-Fraser et al

    Highlights • Systematic review of PSS stigma questionnaires among healthcare professionals. • No single instrument provided acceptable evidence on all measurement properties. • Content validity was inconsistent or indeterminate across all instruments. • Involvement of professionals and patients...
  2. Andy

    Open UK: Be Part of Research registry

    Their search function and account functions seem to operate using differing terms. I created an account and have signed up for updates about studies for "Chronic Fatigue Syndrome (ME/CFS)" and "Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS)". I was able to find those options in...
  3. Andy

    Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue..., 2023, Guo,Lipkin et al

    NIH Directors blog: More Clues into ME/CFS Discovered in Gut Microbiome "As many as 2.5 million Americans live with myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS for short. It’s a serious disease that can often arise after an infection, leaving people profoundly ill for decades...
  4. Andy

    Mitochondrial ATP Production is Required for Endothelial Cell Control of Vascular Tone 2023 Wilson et al

    Abstract Arteries and veins are lined by nonproliferating endothelial cells that play a critical role in regulating blood flow. Endothelial cells also regulate tissue perfusion, metabolite exchange, and thrombosis. It is thought that endothelial cells rely on ATP generated via glycolysis...
  5. Andy

    Correlates of symptomatic remission among individuals with post-COVID-19 condition 2023 Perlis et al

    Abstract Importance Post-COVID-19 condition (PCC), or long COVID, has become prevalent. The course of this syndrome, and likelihood of remission, has not been characterized. Objective To quantify the rates of remission of PCC, and the sociodemographic features associated with remission...
  6. Andy

    Workplace factors that promote and hinder work ability and return to work among individuals with long-term effects of COVID-19: 2023 Gyllensten et al

    BACKGROUND: Long COVID is defined by the persistence of physical and/or psychological and cognitive symptoms debuting after SARS-CoV-2 infection. Individuals affected describe impairing and debilitating symptoms sometimes making it difficult to take part in work and social life. Long COVID is...
  7. Andy

    UK: Campaigns for other illnesses where funders encouraged researchers to apply for funding?

    £50m to accelerate Motor Neurone Disease (MND) research "The NIHR will play a critical role in new government action speeding up research into Motor Neurone Disease (MND) across the UK, with immediate investment so patients can benefit from cutting edge treatment and medicines sooner. Last...
  8. Andy

    Open UK: Be Part of Research registry

    A National Institute of Health Research and NHS project, if you are interested in taking part in research you can sign up, give some personal details and indicate the conditions that you have and are interested in taking part of research into. You will then be notified of studies that match your...
  9. Andy

    Urine Metabolomics Exposes Anomalous Recovery after Maximal Exertion in Female ME/CFS Patients 2023, Glass, Hanson et al

    Mauren Hanson on Twitter, "The lead author of our recent urine metabolomics paper, Dr. Katie Glass, has provided a brief video abstract." The volume seems to be very quiet on the video.
  10. Andy

    Severe and Very Severe Myalgic Encephalopathy/Chronic Fatigue Syndrome ME/CFS in Norway: Symptom Burden and Access to Care 2023 Sommerfelt et al

    Abstract There is a striking lack of systematic knowledge regarding the symptom burden, capacity for activities of daily living, and supportive measures for the most severely ill ME/CFS patients. The present study seeks to address this through a national, Internet-based survey targeting...
  11. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 6th Feb. Facebook: https://www.facebook.com/sci4me/posts/pfbid0pJ2B1xLdiVveDTD1i6JEDFDxRcmiBZpZUpTDoab9BMKJPucwDQa22RjWbqHr3ZUal Mastodon: https://med-mastodon.com/@s4me/109852061312395861 and published papers thread. Facebook...
  12. Andy

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Nina herself uses the term Freedom of Information in her blogs. I think it's a perfectly fine translation as it refers to the principle of public access to information, rather than particularly referring to the UK's legislation and exact way of processing this sort of request.
  13. Andy

    Urine Metabolomics Exposes Anomalous Recovery after Maximal Exertion in Female ME/CFS Patients 2023, Glass, Hanson et al

    Is that likely as the controls were also sedentary, and that the test was "until volitional exhaustion", so the experience was hardly 'a nice bike ride'?
  14. Andy

    UK: Invest in ME Conference 2023

    "The 15th Invest in ME Research International ME Conference 2023 - IIMEC15 - will take place on 2nd June 2023. 15 international conferences, interrupted only by the covid pandemic, welcoming researchers, clinicians, patients and carers from around the world. This year we will revert back to an...
  15. Andy

    Non-Cardiac Chest Pain as a Persistent Physical Symptom: Psychological Distress and Workability 2023 Ólafsdóttir Flóvenz et al

    Abstract Non-Cardiac Chest Pain (NCCP) is persistent chest pain in the absence of identifiable cardiac pathology. Some NCCP cases meet criteria for Persistent Physical Symptoms (PPS), where the symptoms are both persistent and distressing/disabling. This study aimed to identify patients that...
  16. Andy

    Relationship between Reaction Times and Post-COVID-19 Symptoms Assessed by a Web-Based Visual Detection Task 2023 Vincenzo Maiorana et al

    Abstract Long-COVID is a clinical condition in which patients affected by SARS-CoV-2 usually report a wide range of physical and cognitive symptoms from 3 to 6 months after the infection recovery. The aim of the current study was to assess the link between self-reported long-COVID symptoms and...
  17. Andy

    Long COVID could become a widespread post-pandemic disease? A debate on the organs most affected 2023 Ferrara et al

    Abstract Long COVID is an emerging problem in the current health care scenario. It is a syndrome with common symptoms of shortness of breath, fatigue, cognitive dysfunction, and other conditions that have a high impact on daily life. They are fluctuating or relapsing states that occur in...
  18. Andy

    Prevalence, Patterns, and Clinical Severity of Long COVID among Chinese Medicine Telemedicine Service Users: Preliminary Results 2023 Fai Ho et al

    Abstract Introduction: The emergence and persistence of symptoms after acute COVID-19 is expected to become a major burden on healthcare systems. We assessed the features of the post-COVID-19 Syndrome (Long COVID) burden in a cohort of COVID-19 patients during the fifth major wave in Hong Kong...
  19. Andy

    Two-Years Follow-Up of Symptoms and Return to Work in Complex Post-COVID-19 Patients 2023 Van Wambeke et al

    Abstract Introduction: Many COVID-19 patients present with severe long-lasting symptoms. They might benefit from a coordination team to manage such complex situations, but late efficacy still needs to be determined. Population and Methods: Out of 105 contacts, 45 patients had two phone...
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