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I think this is what Trish meant, FOI Documents relating to NICE response to the US IOM report on ME/CFS in 2015

Not that I'm aware of but I noticed that the study I linked to was referenced in this paper, so highlighted it.

Alison Bacon was part of the team that published this, Symptom frequency & development of a generic functional disorder symptom scale suitable for use in studies of patients w/IBS, FM and CFS, 2019, Hyland

"Silencing-the-self (STS) remains a useful psychological framework for understanding women’s health outcomes (Maji & Dixit, 2019) and has been implicated in irritable bowel syndrome (IBS; Ali et al., 2000) and chronic fatigue syndrome (CFS; Hambrook et al., 2011), both chronic inflammatory...

ABSTRACT Poor adult health has consistently been associated with Adverse Childhood Experiences (ACEs). The process is not fully understood but is likely to involve a complex interaction of biological and psychosocial factors. Early life stress can affect the developing brain resulting in...

Abstract This article shares what was learned from the feasibility assessment of a nurse-led school-based active surveillance (SBAS) pilot to track chronic absenteeism using myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) as an exemplar. This pilot encompassed a 3-year period with...

There's a Powerful Link Between Chickenpox And Stroke Risk. We May Finally Know Why "People with shingles have an approximately 80 percent higher risk of stroke than those without the disease, and this risk stays elevated for up to a year after the rash has resolved. Stroke risk is nearly...

Abstract Herpes zoster (HZ; shingles) caused by varicella zoster virus reactivation increases stroke risk for up to 1 year after HZ. The underlying mechanisms are unclear, however, the development of stroke distant from the site of zoster (eg, thoracic, lumbar, sacral) that can occur months...

Trial By Error: Can Functional Neurological Disorder Be an Indication of Prion Disease? https://www.virology.ws/2022/12/21/trial-by-error-can-functional-neurological-disorder-be-an-indication-of-prion-disease/

This is exactly what we have found with the work done for DecodeME, at least in regard to the data available to us from the UK Biobank.

Update on the Delivery Plan. For full update see attached document, the most important one being that the delivery plan will now be published early next year, rather than by the end of this year.

Trial By Error: A Stupid Study of Exercise for Long Covid Patients With Post-Exertional Symptom Exacerbation https://www.virology.ws/2022/12/20/trial-by-error-a-stupid-study-of-exercise-for-long-covid-patients-with-post-exertional-symptom-exacerbation/

APPG report on Long Covid in March of this year, https://www.appgcoronavirus.uk/home/long-covid-report-march-2022

"appears less important" is not the same as "complete irrelevance". Not that I think the study necessarily has value but it's better for any criticism to be accurate, rather than hyperbolic.

Abstract Fibromyalgia (FM) is a chronic and systemic condition that causes widespread chronic pain, asthenia, and muscle stiffness, as well as in some cases depression, anxiety, and disorders of the autonomic system. The exact causes that lead to the development of FM are still unknown today...

Abstract Objective Juvenile Fibromyalgia (JFM) is a complex chronic pain condition that remains poorly understood. The study aimed to expand the clinical characterization of JFM in a large representative sample of adolescents with JFM and identify psychological factors that predict pain...

Full title: Determinants of health-related quality of life across the spectrum of connective tissue diseases using latent profile analysis: Results from the LEAP cohort Abstract Objectives Poor health-related quality of life (HR-QoL) is well recognised in patients with connective tissue...

"Cognitive behavioural therapy (CBT) is effective in reducing fatigue changing how some people answer questionnaires in the short-term across long-term conditions (LTCs)." Fixed that for them.

ME, Long Covid, and the History of Medical Stigma (Podcast) "I recently had the pleasure of talking with the folks at the Norwegian ME Association for their (excellently produced) podcast series. Arising from my new book, we discussed the medical stigma in which an illness is falsely...

Abstract Background The aim of the study was to compare psychological characteristics of adolescent patients with Juvenile Fibromyalgia Syndrome (JFM) with individuals suffering from chronic pain (CP) due to headache or joint pain in the lower limbs unrelated to oncological, inflammatory or...