Published papers thread from w/c 27th Feb
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Abstract
Introduction
Patients with functional neurological disorders (FND) present with weakness, sensory or movement disorder without corresponding brain pathology. The current classificatory systems suggest an inclusionary approach to diagnose FND. Hence, there is a need to systematically...
The next meeting of the All Party Parliamentary Group for ME will include
More detail here, UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward
"The ME/CFS All Party Parliamentary Group will meet on 21 March 2023. In addition to reconstituting the APPG, the AGM will include:
a one year-on review of the implementation of the new NICE guideline including a presentation from Action for M.E. on the results from a Freedom of Information...
Abstract
Background
Skin-restricted lupus is a chronic inflammatory disease associated with high rates of depression and anxiety disorders. Patients without psychiatric disorders can experience anxiety and depressive symptoms at a subclinical level, which could be risk factors for progression...
Abstract
Background and Objective
The objectives of this study were to investigate health care utilization costs of patients with video-electroencephalography (VEEG)–confirmed functional seizures (FS), determine whether patients who received a satisfactory functional neurologic disorder (FND)...
Abstract
Microbially-derived short-chain fatty acids (SCFAs) in the human gut are tightly coupled to host metabolism, immune regulation, and integrity of the intestinal epithelium. However, the production of SCFAs can vary widely between individuals consuming the same diet, with lower levels...
She is also listed as an author on this Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS]
She is currently listed as a Steering Committee Representative for COFFI, https://www.coffi-collaborative.com/steering-committee, so I would say that she can, and is, more than a bit biopsychosocial.
Email from the NIH ME/CFS Information List.
"The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) will sponsor a Scientific Workshop on Post Dialysis Fatigue on May 22-23, 2023. Please visit this URL for more information about the workshop and to register...
"If all forms of cancer were grouped together as one, we'd have no cancer treatments today. The people encouraging combining ME/CFS and LC research are conducting psyops on both communities to stop R&D for both. Please don't be a victim twice. Advocate for separate R&D."
And their Twitter bio...
Cochrane trying to be ironic perhaps?
"Denounce, deny, deceive. The manipulation playbook of anti-science actors. @PhilippMarkolin writes an engaging article about an issue that is increasingly relevant on social media and in the mainstream media too...
Honestly, I don't feel that it would be right for us, as DecodeME, to ask a particular charity to copy what another charity might have done in terms of promoting us. We are grateful for all the support shown to us in all different forms; I know that the MEA has featured us in their members...
Abstract
Background: Long COVID (LC) is a diagnosis that requires exclusion of alternative somatic and mental diseases. The aim of this study was to examine the prevalence of differential diagnoses in suspected pediatric LC patients and assess whether adult LC symptom clusters are applicable to...
Abstract
A novel syndrome called long-haul COVID or long COVID is increasingly recognized in a significant percentage of individuals within a few months after infection with SARS-CoV-2. This disorder is characterized by a wide range of persisting, returning or even new but related symptoms that...
Greenhalgh on Twitter
"Doctors, if you dismiss someone with orthostatic tachycardia as "just anxious" without taking a full clinical history and properly examining them, you may be part of the problem. We've heard some awful stories. Please: read the paper for advice on what tests to do."
"Not...
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