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  1. Andy

    International: Science for ME social media posts

    Published papers thread from w/c 27th Feb Facebook: https://www.facebook.com/sci4me/posts/pfbid032p4UcygmoFSzFbvCED9FRGSpC3TcZdBvmXFD9oNC9V1XAKUSf2DBoyDZKYKqe6KXl Mastodon: https://med-mastodon.com/@s4me/109975673097337341
  2. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 27th Feb. Facebook: https://www.facebook.com/sci4me/posts/pfbid02z62tGUwnc96jUuAnVGmR7EiYZkUL95Kxxy9JfuNRCys9PTmdsWx5Vyzuh8TrWdwol Mastodon: https://med-mastodon.com/@s4me/109970853506777698
  3. Andy

    Diagnostic accuracy of clinical signs and investigations for functional weakness, sensory & movement disorders: A systematic review 2023 Patwal et al

    Abstract Introduction Patients with functional neurological disorders (FND) present with weakness, sensory or movement disorder without corresponding brain pathology. The current classificatory systems suggest an inclusionary approach to diagnose FND. Hence, there is a need to systematically...
  4. Andy

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    The next meeting of the All Party Parliamentary Group for ME will include More detail here, UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward
  5. Andy

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    "The ME/CFS All Party Parliamentary Group will meet on 21 March 2023. In addition to reconstituting the APPG, the AGM will include: a one year-on review of the implementation of the new NICE guideline including a presentation from Action for M.E. on the results from a Freedom of Information...
  6. Andy

    Psychiatric symptomatology in skin-restricted lupus patients without axis I psychiatric disorders: A post-hoc analysis 2023 Rondepierre et al

    Abstract Background Skin-restricted lupus is a chronic inflammatory disease associated with high rates of depression and anxiety disorders. Patients without psychiatric disorders can experience anxiety and depressive symptoms at a subclinical level, which could be risk factors for progression...
  7. Andy

    Health Care Utilization in [FND]s; Impact of Explaining the Diagnosis of Functional Seizures on Health Care Costs 2023 Lagrand et al

    Abstract Background and Objective The objectives of this study were to investigate health care utilization costs of patients with video-electroencephalography (VEEG)–confirmed functional seizures (FS), determine whether patients who received a satisfactory functional neurologic disorder (FND)...
  8. Andy

    Non-pharmacological interventions for self-management of fatigue in adults: An umbrella review of potential interventions... 2023 Brown et al

    Thread here, A mixed-methods systematic review of post-viral fatigue interventions: Are there lessons for long Covid?, 2021, Fowler-Davis et al
  9. Andy

    Microbial community-scale metabolic modeling predicts personalized short-chain-fatty-acid production profiles in the human gut 2023 Bohmann et al

    Abstract Microbially-derived short-chain fatty acids (SCFAs) in the human gut are tightly coupled to host metabolism, immune regulation, and integrity of the intestinal epithelium. However, the production of SCFAs can vary widely between individuals consuming the same diet, with lower levels...
  10. Andy

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    She is also listed as an author on this Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS]
  11. Andy

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    She is currently listed as a Steering Committee Representative for COFFI, https://www.coffi-collaborative.com/steering-committee, so I would say that she can, and is, more than a bit biopsychosocial.
  12. Andy

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Email from the NIH ME/CFS Information List. "The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) will sponsor a Scientific Workshop on Post Dialysis Fatigue on May 22-23, 2023. Please visit this URL for more information about the workshop and to register...
  13. Andy

    Long Covid in the media and social media 2023

    "If all forms of cancer were grouped together as one, we'd have no cancer treatments today. The people encouraging combining ME/CFS and LC research are conducting psyops on both communities to stop R&D for both. Please don't be a victim twice. Advocate for separate R&D." And their Twitter bio...
  14. Andy

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Cochrane trying to be ironic perhaps? "Denounce, deny, deceive. The manipulation playbook of anti-science actors. @PhilippMarkolin writes an engaging article about an issue that is increasingly relevant on social media and in the mainstream media too...
  15. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Honestly, I don't feel that it would be right for us, as DecodeME, to ask a particular charity to copy what another charity might have done in terms of promoting us. We are grateful for all the support shown to us in all different forms; I know that the MEA has featured us in their members...
  16. Andy

    High Prevalence of Alternative Diagnoses in Children and Adolescents with Suspected Long COVID—A Single Center Cohort Study 2023 Goretzki et al

    Abstract Background: Long COVID (LC) is a diagnosis that requires exclusion of alternative somatic and mental diseases. The aim of this study was to examine the prevalence of differential diagnoses in suspected pediatric LC patients and assess whether adult LC symptom clusters are applicable to...
  17. Andy

    Persistent SARS-CoV-2 Infection, EBV, HHV-6 and Other Factors May Contribute to Inflammation and Autoimmunity in Long COVID 2023 Vojdani et al

    Abstract A novel syndrome called long-haul COVID or long COVID is increasingly recognized in a significant percentage of individuals within a few months after infection with SARS-CoV-2. This disorder is characterized by a wide range of persisting, returning or even new but related symptoms that...
  18. Andy

    Practice Pointer: Orthostatic tachycardia after covid-19 2023 Espinosa-Gonzalez, Greenhalgh et al

    Greenhalgh on Twitter "Doctors, if you dismiss someone with orthostatic tachycardia as "just anxious" without taking a full clinical history and properly examining them, you may be part of the problem. We've heard some awful stories. Please: read the paper for advice on what tests to do." "Not...
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