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The WHO approved and implemented my February 2020 proposal for the removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11 yesterday (November 13, 2020): See update in this thread...

Thank you Blueskytoo, Mike and Oni. Yes, I'm very pleased that this proposal was approved before I retire this month. However, the removal of the "Benign" prefix could have been migrated from ICD-10 to ICD-11 by WHO themselves, once it had been implemented in the final ICD-10, in January...

Thank you, Scott. Hah! I don't think I can justify another pair of boots, just yet.

I have updated page 5 of my PDF document: Update on classification and coding of PVFS, ME and CFS for ICD-11 v6 November 2020...

Yesterday, the WHO approved my February 2020 proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11. See thread: Updates on status of ICD-11 and changes to other classification and terminology systems Post #443...

The WHO has approved my February proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11 In March 2016, a representative from the Canadian Institute for Health Information submitted a request and brief supporting rationale to the ICD-10 WHO-FIC Update and Revision...

A selection of points the Barts CF Service made during the development of the 2007 NICE Guidelines for CFS/ME, extracted by Tom Kindlon, can be found at this post on my old ME agenda site. Bart's responses to: disability aids and equipment; making information available on audio tape et al...

Production of NICE Rapid Guidelines: https://www.nice.org.uk/process/pmg20/resources/appendix-l-interim-process-and-methods-for-guidelines-developed-in-response-to-health-and-social-care-emergencies-8779776589/chapter/introduction-and-overview Appendix L: Interim process and methods for...

I haven't been able to find a members' list yet. It's not in the Scope document.

https://www.nice.org.uk/news/article/nice-to-become-single-point-of-access-for-covid-19-guidance-and-advice NICE has today (6 November) announced that it is to host a new, single point of advice on caring for people with Covid-19 and the management of Covid-19 in a variety of clinical settings...

The ME Association used to have a network of local MEA groups which were affiliated to the main MEA - but this was years ago. This arrangement was dissolved and if my memory serves, the then Board of Trustees appropriated these local branches' funds. This took place before Dr Margaret...

It isn't yet known whether new SNOMED CT Concept codes will be added to the UK Edition of SNOMED CT in advance of the publication of the NICE Rapid Guideline (currently projected for December, according to RCGP document Management of the long term effects of COVID-19). Two additional releases...

https://elearning.rcgp.org.uk/pluginfile.php/160164/mod_page/content/6/V2GA%20for%20publication%20updated%20Management%20of%20the%20long%20term%20effects%20of%20COVID-19_formatted_29.10.20.pdf Management of the long term effects of COVID-19 The RCGP response and top tips for caring for our...

That should not have appeared in the post (it was from an earlier discarded draft). I've now edited that line out. But if not being listed as reps for The 25% ME Group (or affiliated to any of the other groups listed), why were no capacities or affiliations listed for Andy and Jo? And were...

Their names are listed under The 25% ME Group.

RiME (Campaigning for Research into Myalgic Encephalomyelitis) is no longer active but was active during period at least 2004 to at least 2010.

Their names are listed under The 25% ME Group. Edited to add: On the new website, the "Associates" are listed only as: http://forward-me.co.uk/linked-organisations-and-associates.html Countess of Mar, Chairman Carol Monaghan (MP) Vice Chairman Dr Nigel Speight Dr William Weir Dr Nina Muirhead

Indeed. And the application by Paul Davis to extend an invitation to RiME (Campaigning for Research into Myalgic Encephalomyelitis) was rejected by the Countess of Mar.

The dates remain the same - both PDFs are dated "30 September 2020". The differences are: 1 The original text of the position statement is signed: "Yours sincerely, Margaret Mar and Denise Spreag On behalf of Forward ME" the revised version is signed: "Yours sincerely, Margaret Mar On...