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A PDF of the revised position statement (which is still dated 30 September 2020) can be downloaded from the site of ME Research UK: https://www.meresearch.org.uk/wp-content/uploads/2020/10/Forward-ME-Position-Statement-Spinal-Surgery-and-ME-15.10.20.pdf The original, jointly signed PDF (dated...

Indeed. #MEAction UK had also worked closely on briefing documents for (the now Vice-chair of Forward-ME) Carol Monaghan MP. What will happen to that working relationship now #MEAction UK is persona non grata? I found myself in a similar situation, in April 2018, as documented on this forum. My...

Here is the full statement: https://www.meaction.net/2020/10/20/meaction-uks-membership-of-forward-me/ October 20, 2020 #MEAction UK are sad to announce that we are no longer part of Forward-ME. #MEAction UK worked hard on and fully supported the Forward-ME statement on spinal surgery and...

I think the forum would be well advised to retain its independence.

Also, new clinical terms for classification and terminology systems need to be unique. What happens if we get, say, a "Corona Virus Disease 2023" or "COVID-23" which also results in its own post viral sequelae and long term symptoms? There may be a need, clinically, and for data analysis to...

I predict that the WHO will list "Long Covid" under Synonyms under whatever term is eventually approved for addition to ICD-10, ICD-11 and SNOMED CT.

The WHO, ICD and SNOMED CT agreed official term and associated coding for the virus (and its associated terminology and codes, for which there are a significant number) is already "COVID-19" - not "COVID" or "Covid". I have considered from the start that the WHO, SNOMED International, NICE...

@Robert 1973 and @Wonko Although development of this guideline is being fast-tracked under the NICE Rapid Guideline process, I assume there will be a public consultation period before the guideline is finalised where your concerns can be raised; the Scoping document was put out for consultation...

Guideline Project documents: https://www.nice.org.uk/guidance/indevelopment/gid-ng10179/documents Guideline Scope published (30 October 2020): https://www.nice.org.uk/guidance/gid-ng10179/documents/final-scope Consultation comments published (30 October 2020)...

See thread UK - NICE guideline on Long Covid to be produced Posts #46, #47, and #48 for text of Guideline Scope document and links for other Project documents: https://www.s4me.info/threads/uk-nice-guideline-on-long-covid-to-be-produced.17142/page-3#post-298114 Project documents...

[ED: My highlighting in brown] Themes to be excluded from the evidence search • Management of acute COVID-19 (symptoms experienced for up to 4 weeks) • Management of other conditions with similar features to post-COVID-19 syndrome, for example post-intensive care syndrome and myalgic...

3 Who the guideline is for The guideline will be of interest to: • Health and social care practitioners, commissioners and providers of NHS-funded healthcare services • People using services, their families and carers. It may also be relevant to providers of private healthcare services. 4...

NICE Guideline Scope https://www.nice.org.uk/guidance/gid-ng10179/documents/final-scope COVID-19 guideline scope: management of the long-term effects of COVID-19 NHS England and the Chief Medical Officer of the Scottish Government have asked NICE and SIGN to develop a guideline on the...

https://nice-newsroom.prgloo.com/news/nice-sign-and-rcgp-set-out-further-details-about-the-uk-guideline-on-management-of-the-long-term-effects-of-covid-19-press-release 30 Oct 2020 NICE, SIGN and RCGP set out further details about the UK guideline on management of the long-term effects of...

Moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid https://nice-newsroom.prgloo.com/news/nice-sign-and-rcgp-set-out-further-details-about-the-uk-guideline-on-management-of-the-long-term-effects-of-covid-19-press-release 30 Oct 2020 NICE, SIGN and RCGP set out...

Cue snouts in troughs.