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  1. Barry

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Yes! Being as there is so much interest in psychological implications for ME/CFS, it's about time the psychological trauma of being maligned and mistreated, year in year out, by the very profession supposed to help you, was taken into account. This not a trivial issue. What would be the...
  2. Barry

    "Should The BMJ silence authors who were abused by a reviewer?" (2017)

    https://www.s4me.info/threads/michael-sharpe-skewered-by-johnthejack-on-twitter.3464/page-88#post-84643 Note: Despite the thread title, Michael Sharpe is not reviewer 2.
  3. Barry

    Who is Simon Wessely?

    Not just a stupid answer but a stupid question! It is such a leading and biased question. Half of the answer is already in the question. Oh for independent, high integrity journalism.
  4. Barry

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    And the authors' interpretation of their results is completely oblivious to both those possibilities. But I would have no problem with the possibility their intervention did nothing more than to inadvertently promote what the patient community have been telling pwME they need to do anyway. That...
  5. Barry

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    The problem basically is that their interpretation of their results ignores the reality of those results. None so blind as those who do not want to see.
  6. Barry

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    I think this result shows what pwME have been trying to tell them for years: The symptoms of ME/CFS correlate strongly with physical activity, and that there is a causal relationship - too much activity will lead to worsening symptoms. I think the authors' "surprise" may be because they simply...
  7. Barry

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Really highlights the massive conflict of interests these publishers have, and how that, instead of rising above it as they should do, it's almost as if conceding to those COI forms an integral part of their business model. It's quite revolting.
  8. Barry

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    I'd be interested if you could clarify that please. In my world of engineering feasibility studies sometimes make sense when wanting to assess if an idea is worth further researching/developing, and if it is, helping convince the bean counters it is worth their while stumping up the cash to do...
  9. Barry

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    Yes. Shape shifting. The way so many powerful people and organisations do when it finally starts to dawn on them the false realities they have been pushing may be coming unstuck. Can the own up to that? No, of course not, so they instead seek to convince everyone (themselves especially) that...
  10. Barry

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    In which case if it's another, far less fortunate, Arnold Schwarzenegger, lets hope they don't see your comment Andy :).
  11. Barry

    BMC family practice integrated GP care for patients with persistent physical symptoms, 2020, Chalder et al

    I think the above is coded-speak for convincing patients there is nothing really wrong with them, and condition them into believing the NHS should not be having to waste its time and resources on them ... and so the NHS can wash its hand of them.
  12. Barry

    Coronavirus - worldwide spread and control

    Although this is inevitably political, it focusses strongly on the scientific and ethical implications for virus spread. https://www.adn.com/nation-world/2020/10/13/proposal-to-hasten-herd-immunity-grabs-white-house-attention-appalls-top-scientists/
  13. Barry

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Yes, I've been thinking about this a bit more. If I'm feeling down, confused or upset about something, and need to get out and try and sort myself out, a standard strategy I have for that is to go for a walk - helps me sort all sorts of stuff out in my head. (For anyone who does not already...
  14. Barry

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Yes, I suppose the unfortunate truth there is that the medical profession has been so obsessed with the wrong sort of CBT for ME/CFS, that no one has ever bothered trialling truly supportive CBT.
  15. Barry

    NICE ME/CFS draft guideline - publication dates and delays 2020

    "CBT" is simply the name for a tool, the same way that a "knife" is simply a tool. There are many different kinds, and many different ways they can be used or abused. If the right kind is properly used - not abused - then that is fine. For any serious illness, some people will be better able to...
  16. Barry

    Ethical Psychotherapeutic Management of Patients with Medically Unexplained Symptoms: The Risk of Misdiagnosis and Harm. O'Leary & Geraghty. 2020

    Only skimmed the first bit so far. That hits the nail on the head. Ambiguity seems to be the hallmark of BPS psychiatry.
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