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Which would be very much at odds in that case with the psych responses on the SMC website, where they still strongly peddle their belief in GET. Or are they trying to suggest that GET still works, even if their illness model underpinning PACE is now disproven. In which case GET has never been...

Certainly at odds with the psych contingent of the Bristol CFS/ME service. Is he in open disagreement with them? Or is he/they trying to mask all the bad they've done to date? I guess there must be considerable pressure on them to about turn and try and save face in the process. Interesting.

Yes indeed! Needs to segregate the title from the authors. But the article itself makes it clear enough, which is the main thing.

I think there is also another reason - that they literally cannot see evidence of harms because they misconstrue what they see. They look only for the most serious of harms, not realising that people's deteriorating health can actually be due to the treatments. But in their arrogant presumption...

Not just GET, but CBT quality of evidence also rated low to very low throughout so far as my quick skim showed.

And of course, given the BPS therapies link patients' progress to how determined they are to get better, any decline in health is deemed due to lack of determination. Win-win for the therapists, lose-lose for the patients. Especially as they then likely drop off the radar. Hope to goodness...

Yes, but should ME/CFS patients be singled out as needing their thoughts being corrected any more than any other patient might need? It's not about saying ME/CFS patients should be denied CBT if their situation is similar to any other patient similarly needing it. It's about the fact there is no...

Yes.

That's why I said hypothetical. It's just an engineering technique I'm much accustomed to when trying to understand things if they exist on a continuum. Look at the extremes, no matter how outlandish they may be, to help get a better picture of what the full range is, and then home in on what...

Don't entirely agree. Yes, they can only make final decision, but that decision could go the wrong way if we badly misjudge. There's a gamble involved, because you don't get to make a submission with the option to keep resubmitting if it has the wrong effect. So there is a real decision process...

Yes, it is interesting that whenever anyone or any organisation speaks unfavourably of their science, they invariably attack the critic, not the scientific arguments. It seems it is NICE's turn now. Ironic really, given the 2007 guideline was influenced much more by bad eminence-driven...

Absolutely agree with this. What we have already with this draft is very impressive - better than most dared hope for in truth. Tweaking to close off serious loopholes seems achievable. Trying to go beyond the realistic in search of perfection would be needlessly very high risk, when the...

Yes, psychiatry forever seems to get its carts and horses the wrong way round. Invariably being guided by what they "prefer" rather than by the science, which seems to so elude them.

But I think the pilot was also very modest. Most references to the "miracle" related to his considerable skills and experience, and the element of luck - good or bad - that always plays its part, no matter what the science and technology. Just on flying skills alone it was highly impressive. One...

Hopefully though, if the UK's NICE really does come through and fully deliver the goods, that would set a very significant precedent to hopefully boost advocacy in other countries.

Hear hear x10. But I'm aware to not count chickens yet, until the new guideline is formally published.

In Energy Management, 1.11.2 we have: In Physical Activity, 1.11.16 we have: The BPS deconditioning model revolves around pwME being deconditioned. Without the deconditioning bit then the false illness beliefs, symptom focussing, etc fall apart anyway. I'm not sure if a NICE guideline needs to...

I do appreciate your sentiment here, but I think that would just open the door for the BPS crew to fire back at us "Well OK, explain it to us then." The simple truth is that ME/CFS is medically unexplained in many ways. The problem with MUS is the presumption that anything medically unexplained...

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Sounds like the makings of a new word game ;).