£6m needed to tackle ME crisis as patients demand action over long covid fears
features @Emsho and her mum
https://www.dailyrecord.co.uk/news/scottish-news/6m-needed-tackle-crisis-patients-28069473
"Finally! New @WHO guideline specifies: NO EXERCISE THERAPY for #PostCovid patients if they suffer from POST-EXERTIONAL SYMPTOM EXACERBATION."
it's only taken 'the ME community' 30 years of grief to begin to get this acknowledgement and the fight still continues. :sick:
Abstract
Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a fluctuating complex condition. More common in women than men, it tends to develop between mid-20s and mid-40s, including the main childbearing age (15–45 years). There are currently no systematic reviews...
Clinical Psychology in Europe. the Official Academic Journal of the European Association of Clinical Psychology and Psychological Treatment
TC is on the editorial board
https://cpe.psychopen.eu/index.php/cpe/editorial-board
RGA (Reinsurance Group of America, Incorporated (NYSE: RGA) is one of the largest global life and health reinsurance companies. With headquarters in St. Louis, Missouri, RGA supports clients and partners around the world through innovative approaches and customized solutions.)
article...
MEA
Work underway to support the development of a Delivery Plan on ME/CFS
https://meassociation.org.uk/2022/09/work-underway-to-support-the-development-of-a-delivery-plan-on-me-cfs/
article on the paper
Fatigue May Artificially Increase Disease Activity Scores in Lupus
https://www.rheumatologynetwork.com/view/fatigue-may-artificially-increase-disease-activity-scores-in-lupus
Fatigue is independently associated with disease activity assessed using the Physician Global Assessment but not the SLEDAI in patients with systemic lupus erythematosus
Abstract
Objectives To analyse whether reported fatigue, one of the most challenging manifestations of systemic lupus...
Special Issue "Bias in Health Care Service Experienced by People with Long COVID or Chronic Illness: Lessons for the Public Health and Medical Community"
https://www.mdpi.com/journal/ijerph/special_issues/EH45SDFABN
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