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  1. Sly Saint

    News from Scotland

    £6m needed to tackle ME crisis as patients demand action over long covid fears features @Emsho and her mum https://www.dailyrecord.co.uk/news/scottish-news/6m-needed-tackle-crisis-patients-28069473
  2. Sly Saint

    WHO Clinical management of COVID-19 patients: living guideline

    "Finally! New @WHO guideline specifies: NO EXERCISE THERAPY for #PostCovid patients if they suffer from POST-EXERTIONAL SYMPTOM EXACERBATION." it's only taken 'the ME community' 30 years of grief to begin to get this acknowledgement and the fight still continues. :sick:
  3. Sly Saint

    OP72 Myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review 2022, Pearce et al

    article about the paper An Ongoing Tragedy: Women with ME/CFS, Their Infertility, Miscarriages & Babies Born with Learning Disabilities (substack.com)
  4. Sly Saint

    OP72 Myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review 2022, Pearce et al

    Abstract Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a fluctuating complex condition. More common in women than men, it tends to develop between mid-20s and mid-40s, including the main childbearing age (15–45 years). There are currently no systematic reviews...
  5. Sly Saint

    The highs and lows of a PhD in ME research 23rd September 2022

    The highs and lows of a PhD in ME research - Quadram Institute
  6. Sly Saint

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    Clinical Psychology in Europe. the Official Academic Journal of the European Association of Clinical Psychology and Psychological Treatment TC is on the editorial board https://cpe.psychopen.eu/index.php/cpe/editorial-board
  7. Sly Saint

    Experiences with Insurance Companies

    RGA (Reinsurance Group of America, Incorporated (NYSE: RGA) is one of the largest global life and health reinsurance companies. With headquarters in St. Louis, Missouri, RGA supports clients and partners around the world through innovative approaches and customized solutions.) article...
  8. Sly Saint

    United Kingdom: UKCRC (UK Clinical Research Collaboration) Subgroup on ME (part of the UK Government ME/CFS Delivery Plan)

    MEA Work underway to support the development of a Delivery Plan on ME/CFS https://meassociation.org.uk/2022/09/work-underway-to-support-the-development-of-a-delivery-plan-on-me-cfs/
  9. Sly Saint

    Fatigue is independently associated with disease activity assessed using the PGA but not the SLEDAI in systemic Lupus erythematosus, 2022, Mertz et al

    article on the paper Fatigue May Artificially Increase Disease Activity Scores in Lupus https://www.rheumatologynetwork.com/view/fatigue-may-artificially-increase-disease-activity-scores-in-lupus
  10. Sly Saint

    Fatigue is independently associated with disease activity assessed using the PGA but not the SLEDAI in systemic Lupus erythematosus, 2022, Mertz et al

    Fatigue is independently associated with disease activity assessed using the Physician Global Assessment but not the SLEDAI in patients with systemic lupus erythematosus Abstract Objectives To analyse whether reported fatigue, one of the most challenging manifestations of systemic lupus...
  11. Sly Saint

    IJERPH: Special Issue "Bias in Health Care Service Experienced by People with Long COVID or Chronic Illness: Lessons for the Public Health and Medical

    Special Issue "Bias in Health Care Service Experienced by People with Long COVID or Chronic Illness: Lessons for the Public Health and Medical Community" https://www.mdpi.com/journal/ijerph/special_issues/EH45SDFABN
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