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  1. Sly Saint

    “Long COVID-19” and viral “fibromyalgia-ness”: Suggesting a mechanistic role for fascial myofibroblasts (Nineveh, the shadow is in the fascia) 2023

    Department of Basic and Clinical Sciences, University of Nicosia Medical School, Nicosia, Cyprus The coronavirus pandemic has led to a wave of chronic disease cases; “Long COVID-19” is recognized as a new medical entity and resembles “fibromyalgia” which, likewise, lacks a clear mechanism...
  2. Sly Saint

    Muscle sodium content in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2022, Petter, Scheibenbogen, Wirth et al

    correction https://www.researchgate.net/publication/369791409_Correction_Muscle_sodium_content_in_patients_with_Myalgic_EncephalomyelitisChronic_Fatigue_Syndrome
  3. Sly Saint

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    even here they keep using 'chronic fatigue'. gold-standard? not good enough.
  4. Sly Saint

    The Role of Psychotherapy in the Care of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2023, Grande,Vink,Hughes et al

    quite. In their conclusions the authors say "a radical paradigm shift is needed in psychotherapy, health psychology, and other fields where psychosocial and behavioral support is provided to ill people". As psychotherapy is now so embedded in healthcare, seemingly unquestioned, (ie the evidence...
  5. Sly Saint

    The biology of coronavirus COVID-19 - including research and treatments

    Covid origins: Chinese scientists publish long-awaited data https://www.bbc.co.uk/news/science-environment-65204169
  6. Sly Saint

    The Role of Psychotherapy in the Care of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2023, Grande,Vink,Hughes et al

    "It is important to realize that pacing is a way of trying to prevent symptom exacerbations and relapses. It is not a treatment that will lead to recovery or a significant improvement in function." "Psychotherapeutic work with ME/CFS sufferers aims at recognizing and acknowledging (stress)...
  7. Sly Saint

    Article: The Hidden Struggle of Being Young and Chronically Ill

    https://www.msn.com/en-us/health/wellness/the-hidden-struggle-of-being-young-and-chronically-ill/ar-AA19wwDe
  8. Sly Saint

    Producing ME/CFS in Dutch Newspapers. A Social-Discursive Analysis About Non/credibility 2023, de Boer, Slatman

    ABSTRACT Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a highly contested illness. This paper analyzes the discursive production of knowledge about, and recognition of ME/CFS. By mobilizing insights from social epistemology and epistemic injustice studies, this paper reveals...
  9. Sly Saint

    USA: Invigormedical , Online Women’s and Men’s Health Clinic

    the website then seems to use 'chronic fatigue' repeatedly exercise is in there. https://www.invigormedical.com/invigor-medical/what-is-chronic-fatigue-symptoms-and-treatments/
  10. Sly Saint

    Adults with ME/CFS report surprisingly high rates of youth symptoms: A qualitative analysis of patient blog commentary 2023 Johnson, Jason et al

    very short video "Leonard Jason discusses the prevalence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) among a sample of 465 patients with Long COVID https://buff.ly/414Ri6n #LongCovid "
  11. Sly Saint

    The Role of Psychotherapy in the Care of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2023, Grande,Vink,Hughes et al

    Abstract: Myalgic encephalomyelitis/chronic fatigue (ME/CFS) is a post-infectious, chronic disease that can lead to severe impairment and, even, total disability. Although the disease has been known for a long time, and has been coded in the ICD since 1969 (G93.3), medical research has not yet...
  12. Sly Saint

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    for ESA the DWP send a form ESA113 to your GP. I managed to get a copy of one of them and the GP (who is my registered GP) basically put 'don't know' throughout and said that he had never met me. That is true, as I rarely visit the GP and when I did I mostly saw locums. But given the...
  13. Sly Saint

    Long Covid in the media and social media 2023

    part 2 https://www.wsws.org/en/articles/2023/04/05/long-a05.html
  14. Sly Saint

    News from Scandinavia

    Rakel fears for her sons’ health, after emergency alerts on mobile phones were introduced – Dagsavisen https://norway.postsen.com/trends/106748/Rakel-fears-for-her-sons%E2%80%99-health-after-emergency-alerts-on-mobile-phones-were-introduced-%E2%80%93-Dagsavisen.html
  15. Sly Saint

    Long Covid in the media and social media 2023

    World Socialist Website A social and medical examination of Long COVID as a “mass disabling event”: Part 1 Frank Gaglioti https://www.wsws.org/en/articles/2023/04/04/long-a04.html
  16. Sly Saint

    Functional Medicine Approach to Treatment of Chronic Fatigue Syndrome Symptoms : lab tests

    I have no idea about the validity of any of the tests listed in this article and am only posting for information. The article as a whole is entitled "Functional Medicine Approach to Treatment of Chronic Fatigue Syndrome Symptoms". Part way down is " What Functional Medicine Labs Can Test for...
  17. Sly Saint

    Physical Activity Effects on Muscle Fatigue in Sport in Active Adults with Long COVID-19: An Observational Study 2023, Coscia et al.

    Abstract: Long COVID-19-related changes in physiology includes alterations in performing muscle work as fatigue. Data available do not allow us to define the usefulness of physical activity to attenuate long COVID-19 functional modifications. The present observational study investigates the...
  18. Sly Saint

    Natural killer cytotoxicity in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): a multi-site,.., of ME/CFS (MCAM) sub-study 2023

    authors: Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multisystem illness characterized by substantial reduction in function accompanied by profound unexplained fatigue not significantly relieved by rest, post-exertional malaise, and other symptoms...
  19. Sly Saint

    Education on medically unexplained symptoms: a systematic review with a focus on cultural diversity and migrants 2023, Vermeir et al

    Abstract Background Health care providers often struggle with the management of patients with medically unexplained symptoms (MUS), especially in case of a different ethnicity and/or cultural background. These challenges are insufficiently addressed in their training. Objectives A systematic...
  20. Sly Saint

    ME/CFS - An Overview of an Underappreciated Disease

    A discussion of the symptoms, epidemiology, diagnostic criteria, pathogenesis, treatment, and prognosis of ME/CFS. For more information, I recommend checking out: me-pedia.org Because I anticipate it may be the most controversial topic raised in the video, the hypothesis that ME and CFS may be...
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