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  1. Sly Saint

    #Raspberries4MECFS Social Challenge to support the work of Dr. Alain Moreau's RAman SPectroscopy BiomarkER-Based DiscoverY (RASPBERRY) & Dr Morten

    is raspberry not also used as in 'blowing a raspberry' in the americas? ie :p seems an odd choice for a biomedical ME research program; had it been bps, not so much.
  2. Sly Saint

    USA: Osteopathic Family Medicine, LLC

    https://www.osteopathicfamilymedicine.com/ Patient education: Chronic fatigue syndrome https://www.osteopathicfamilymedicine.com/patient-education-topics/chronic-fatigue-syndrome
  3. Sly Saint

    Nurses for ME

    came across this website nursinginpractice365 (https://nursinginpractice365.uk/about/) you need to be a member to access content but they have this https://nursinginpractice365.uk/browse-all/ see 'Caring for patients with chronic fatigue' - Anna Gregorowski (BACME)...
  4. Sly Saint

    United Kingdom: BACP (The British Association for Counselling and Psychotherapy)

    Chronic pain - what therapy can help with https://www.bacp.co.uk/about-therapy/what-therapy-can-help-with/chronic-pain/
  5. Sly Saint

    A review of cytokine-based pathophysiology of Long COVID symptoms 2023, Low et al

    The Long COVID/Post Acute Sequelae of COVID-19 (PASC) group includes patients with initial mild-to-moderate symptoms during the acute phase of the illness, in whom recovery is prolonged, or new symptoms are developed over months. Here, we propose a description of the pathophysiology of the Long...
  6. Sly Saint

    Cardiopulmonary testing (CPET): Workwell foundation

    full blog here https://workwellfoundation.org/cardiopulmonary-exercise-testing-cpet/
  7. Sly Saint

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    PIP can be applied for in a new way as DWP announces important change DWP trials new PIP digital application process | Personal Finance | Finance | Express.co.uk
  8. Sly Saint

    News from Canada

    Fee Code Table 3: Revised Fee ScheduleCodes – Physician Services Ministry of Health April 1, 2023 https://www.health.gov.on.ca/en/pro/programs/ohip/bulletins/redux/docs/INFOBulletin230310_table3.pdf
  9. Sly Saint

    Lightning Process - discussion thread

    follow up article: ME/CFS: Yes, the ‘Lightning Process’ is nonsense, but is there any other so-called alternative medicine worth trying? https://edzardernst.com/2023/03/me-cfs-yes-the-lightning-process-is-nonsense-but-is-there-any-other-so-called-alternative-medicine-worth-trying/
  10. Sly Saint

    Measuring objective fatigability and autonomic dysfunction in clinical populations: How and why? 2023, Millet et al

    Fatigue is a major symptom in many diseases, often among the most common and severe ones and may last for an extremely long period. Chronic fatigue impacts quality of life, reduces the capacity to perform activities of daily living, and has socioeconomical consequences such as impairing return...
  11. Sly Saint

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Information, education and support for health and social care professionals Myalgic encephalomyelitis (or encephalopathy) / chronic fatigue syndrome: diagnosis and management Evidence review B NICE Guideline, No. 206 London: National Institute for Health and Care Excellence (NICE); 2021 Oct...
  12. Sly Saint

    NHS: GP surgeries; privatisation; physician associates

    interesting thread from Keith Geraghty
  13. Sly Saint

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    Chance to meet ME & Long Covid team https://www.manxradio.com/news/isle-of-man-news/chance-to-meet-me-and-long-covid-team/
  14. Sly Saint

    News from Doctors with ME

    has anyone any recent news about DWME? nothing on twitter since Oct 2022.
  15. Sly Saint

    Lightning Process - discussion thread

    "The NICE guidelines for ME/CFS specifically (and in my view rightly) warn against offering LP to ME patients."
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