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I often feel out of breath, which in my case seems to be related to orthostatic intolerance. Sometimes just from sitting up in bed. PEM makes it much worse. When I'm having severe PEM it sometimes feels as if I'm on a very high altitude, as if the air is way too thin, as if there isn't enough...

Thanks for letting me know. I'm not sure what's wrong, the post is still there. Does this one work better for you?

He was using the same word one would use to describe for example the state of the soil in a flower pot or a flower bed. It's the opposite of packed/dense/compact/hard/heavy, so it can mean lightweight, that it's aerated/has a lot of air in it, that it's "fluffy" and porous. So yes, you could say...

Just to clarify, by "this is an example of what is being taught at these seminars", I only meant the kind of stuff expressed in the Per Julin quote. Not the whole article or the bps stuff.

(I'm crashed, unable to give a full recap. Sorry.) No new info. He was there to talk about their "new extraordinary findings", their research study that was published a while ago. Hypermobility, intracranial hypertension and craniocervical obstructions. He said it's one of the journal's most...

Moved posts Björn Bragée was on TV today, on Malou efter tio (13 minutes, in Swedish): Nya ME-upptäckten: ”Långt över vad man kan förvänta sig” https://www.tv4play.se/program/malou-efter-tio/13296779

Article now available in English too: https://ki.se/en/research/dead-tired-curious-about-tiredness

26 November 2020 https://magnetevent.se/Event/utmattningssyndrom-och-mecfs-35866/

Aftonbladet: ”Tro, hopp och kärlek”-prästen om sjukdomen: ”Ändrat livsstil helt” Åsa Meurling drabbad av kronisk trötthetssyndrom https://www.aftonbladet.se/nojesbladet/a/vAQnRw/tro-hopp-och-karlek-prasten-om-sjukdomen-andrat-livsstil-helt Google Translate, English

BBC News: Covid virus ‘survives for 28 days’ in lab conditions https://www.bbc.co.uk/news/amp/health-54500673 :wtf: ETA direct link to the study: The effect of temperature on persistence of SARS-CoV-2 on common surfaces https://virologyj.biomedcentral.com/articles/10.1186/s12985-020-01418-7

Dysautonomia International 2020 Virtual Conference October 15-18, 2020. Will be broadcast live online through Zoom. Registration is free. https://www.dysautonomiainternational.org/page.php?ID=205

Sten Helmfrid has published an article on why ME/CFS is a distinct clinical entity, separate from unexplained chronic fatigue. The abstract is in English, but the text is in Swedish. https://www.researchgate.net/publication/344465562_Vad_ar_MECFS_och_varfor_ar_det_en_klinisk_entitet...

"Vägen framåt till ett friskare liv efter Covid-19" ("The way forward to a healthier life after Covid-19") is a recently published Swedish book on how to get rid of long-covid symptoms and get your strength back... :rolleyes: Written by a "coach" (not a medical doctor). Description by the...

An opinion piece written by the counsellor at Bragée ME-center. Aftonbladet: ME-sjuka tvingas leva helt utanför samhället Nu måste Försäkringskassan bli mer human https://www.aftonbladet.se/debatt/a/aP2mVd/me-sjuka-tvingas-leva-helt-utanfor-samhallet Google Translate, English ("ME patients are...

The appeals court has shortened the sentence to 12 months. The defense lawyer intends to appeal again, arguing that his client should be acquitted. More info in the following news articles: https://www.expressen.se/nyheter/krim/han-gav-sin-sjuka-fru-dodsspruta-vill-frias/...

A moving personal letter/article published in a Swedish medical journal, written by a MD PhD (plastic surgeon). Läkartidningen: "Utkast till minnesord över en älskad hjärna" https://lakartidningen.se/aktuellt/kultur-2/2020/09/utkast-till-minnesord-over-en-alskad-hjarna/ Google Translate...

@Hutan Here's a SciHub link that works: https://sci-hub.st/10.3233/WOR-203170

I don't know. I couldn't find any info about that in the documents attached to/linked from the study information page.