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  1. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    I don't know. I don't think so? Their head of research Bertilson was interviewed on TV a few weeks ago, but he didn't mention anything new or planned. They haven't published any related research news or updates on the clinic's social media, and there has been no talk about it among their...
  2. mango

    USA: Mount Sinai PACS clinic and Dr David Putrino

    According to this tweet/thread, the goal is to challenge the ANS in order to change its behaviour.
  3. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Karolinska Institutet also has this article from 2020 about Lindsäter's thesis on CBT for exhaustion disorder (12 weeks, online). KBT för utmattningssyndrom ger effektiv symtomlindring https://nyheter.ki.se/kbt-for-utmattningssyndrom-ger-effektiv-symtomlindring Lindsäter' thesis with links to...
  4. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    P.S. The main reason I keep posting about ED here on the forum is that in countries other than Sweden, many (or most?) pwED are probably being lumped in under the CFS umbrella and/or MUS. Also because it's such a common misdiagnosis for pwME, and the currently recommended treatment for ED is...
  5. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Opinion piece about exhaustion syndrome in Swedish newspaper DN, by the authors of the research article. DN Debatt. ”De utmattade måste få tillgång till rätt vård” https://www.dn.se/debatt/de-utmattade-maste-fa-tillgang-till-ratt-vard/ Forum threads on the biomarker studies here and here.
  6. mango

    News from Scandinavia

    Opinion piece about exhaustion syndrome in Swedish newspaper DN. DN Debatt. ”De utmattade måste få tillgång till rätt vård” https://www.dn.se/debatt/de-utmattade-maste-fa-tillgang-till-ratt-vard/ They have also recently published a scientific article. I started a forum thread here, and will...
  7. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Elin Lindsäter, Frank Svärdman, John Wallert, Ekaterina Nikolaevna Ivanova, Anna Söderholm, Robin Fondberg, Gustav Nilsonne, Simon Cervenka, Mats Lekander, Christian Ruck ABSTRACT Background Symptoms related to chronic stress are prevalent and entail high societal costs, yet there is a lack of...
  8. mango

    News from Scandinavia

    Another article about pwME Niklas Malmqvist in Sweden. Niklas om sin ME: Det värsta är att tvingas vara självisk https://www.wellness.se/halsa/sjukdomar-och-besvar/a/KzgVg7/niklas-om-sin-me-det-varsta-ar-att-tvingas-vara-sjalvisk Do be aware that Niklas and his influencer partner Vanja...
  9. mango

    ME researcher Jonas Bergquist - interviews, talks

    From the News in Scandinavia thread:
  10. mango

    News from Scandinavia

    ME on the Swedish breakfast TV show Nyhetsmorgon today (7 minutes). With Jonas Bergquist. https://www.tv4play.se/program/nyhetsmorgon/jennys-dotter-fick-me-diagnos-vid-11-lampan-slocknar-mer-och-mer/13767954
  11. mango

    Sweden: Free webinar on long covid, 6 May 2022

    The webinar is now available to rewatch here: https://www.hjart-lungfonden.se/postcovid/
  12. mango

    ME Awareness Day / Week / Month, May 2022

    Fundraising post by Swedish crime fiction author and pwME Karin Alvtegen: https://www.facebook.com/KarinAlvtegen/posts/pfbid0XUwruaV2X9NdapE246LYeJ4C8KjhMEdaHdJscEMZuyfkJhdHBJCorV7PhnVjaGvYl
  13. mango

    Sweden: Free webinar on long covid, 6 May 2022

    It's live on YouTube now:
  14. mango

    The effect of water temperature on orthostatic tolerance: a randomised crossover trial, 2022, Lain T Parsons et al

    Can somebody please start a poll about this here on the forum? And/or on Twitter? I'd love to learn more about people's experiences. Even if it's not "bolus drinking" per se, but just drinking some amount of extra water? (I'm too crashed to start a poll myself.)
  15. mango

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Maybe he could ask someone else to help then, instead of only Wallitt? Personally, I highly doubt that anything analysed or written by someone with such strong prejudices (as the ones Wallitt has expressed) would be reliable in this context. :grumpy:
  16. mango

    Closed Sweden 2022: The REDBANK Study - Amelieklinikin (was RED Clinic) Jonas Axelsson

    A project description in English, including methods etc, is available to download through the link below. The name of the file is "Grundansökan-Bilaga4-Scientific program (1).pdf" https://www.dropbox.com/sh/jywkzl96xvhlyex/AACcILy6k5sQ0Hsai8FWz0wla?dl=0
  17. mango

    Closed Sweden 2022: The REDBANK Study - Amelieklinikin (was RED Clinic) Jonas Axelsson

    An update on this. The Swedish Ethical Review Authority has not received any new applications from Ameliekliniken or Jonas Axelsson.
  18. mango

    What does it mean when an ME/CFS patient says they "got long covid" after catching SARS‑CoV‑2 (COVID)?

    Several of my pwME friends have gotten long covid. I've been reading lots of posts in the Swedish groups on social media too, both ME, long covid and POTS groups. As far as I understand it, they describe a kind of symptom exacerbation and deterioration that is different to what they have ever...
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