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Yes, it's very muddled. The 'psycho' element seems shoehorned in so that the author can claim to be writing their Grand Unifying Theory of ME. There are several leaps of logic and bits where they openly contradict themselves. That they simultaneously think CBT is sketchy and an alternative to...

I was just about to write that too!

A lot of it is to do with ego too. Just look at those who emerged from the organisation... Delusions of grandeur and an obsession with paternalistic authority.

Yes. And the Revolutionary Communist Party have frequently been accused of entryism (i.e., infiltrating the left to propagate ideas which aren't very left at all). They made some very contentious statements during the AIDS crisis, which perhaps foreshadows the work of the SMC!

Is there an option to have a signature in every post automatically? That would be another option. I too am keen to see the figures. Walk us through the equation to work out who's going know respond or not, perhaps?

This is good news.

To be honest, they feel more New Labour than actually left, to me. And New Labour was basically Tory-lite. The SMC comes from that sort of icky looks-left-but-acts-right ideology. It's all neo-liberalism (do as thou wilt so long as you're powerful), calls to listen to and obey authority...

How's that complaint of Myhill's going? Maybe it's got him all shook up (a-huh-huh).

Your table sounds like a nightmare! I'm sorry to hear that. I got the opposite feeling from the meeting. LP needs to be in there for them to decide NOT to use it too. They can't just ignore evidence. They need to assess it first, even if it's terrible. They were keen to state that it didn't...

Well exactly. And there was a very limited amount of time. The debate around names is one we could have forever, but ME/CFS will do for now. It shows NICE is listening. This was always going to be an exercise in compromise, though. There's a need to be pragmatic. If we'd spent an hour talking...

I'm pleased with Clare's statement and AfME's points here. I think it means the message has got through, clearly. I'm glad AfME raised aetiology too. I'm not sure if it should be included in the scope or not, but last time exercise studies were excluded because they were considered to be about...

While I may agree that unproven symptoms count as syndromes or illnesses, rather than specific diseases, the number of assumptions and false ideas in this article is appalling: Link: https://www.psychologytoday.com/gb/blog/patient-zero/201805/chronic-pain-is-not-disease Firstly, brain changes...

I get joint and muscle pain. I have a family history of arthritis (ankylosing spondylitis, osteoarthritis, septic arthritis, the works) on both my mum and dad's sides of the family. My nana complains of non-specific ailments and fatigue, as does my aunt (her daughter), and my aunt, at least...

We suggested using actometers as an objective measure, but suggested they focus on more of them, over the subjective measures suggested. BACME have undoubtedly been part of the problem, because until now, their membership criteria 1) require adherence to the so-called 'evidence-based' method...

That'll be my new nickname from them.

Dr Worthley from the ME Trust is based in Brighton. He's not NHS, but I think they offer bursaries for consultations if you can't afford the £20 per appointment. He was helpful when I spoke to him on the phone...

Very interesting.

I should add, they joked that they weren't used to getting praise. I think they know the consequences of getting it wrong.

That was my impression too. I am feeling cautiously optimistic. They seemed well informed, so I can only assume the campaigning and controversy have had the desired effect. I think they want to limit future furore, and this guideline is crucial in winning back some popular support.

It was frustrating when people mentioned the 'multidisciplinary care' thing. I wished someone had spoken out against it, because no one did, but I felt there were only so many objections and disagreements I could voice without seeming perverse. By being randomly assigned to groups, it's not even...