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20 years ago, you tell people you’ve been housebound for years and they look at you like you’re an alien and start side-stepping away from you... wondering if you have bodies buried in the cellar :nailbiting: Now, you tell younger people you’ve been stuck indoors for years and they still look...

Hmm thats strange, anything i try to look up on hfme in general throws up the ‘server not found’ page :thumbsdown:

Links not working @Roy S :facepalm: I tried typing it in but the web page still isn’t opening. Adrenaline surge tip 1: avoid technology unless absolutely essential :whistle:

Aye there’s nowt worss when someone tarks in a weird accent n ya cannat folla quick enough nd ya dinnit understand a ward ;) Followed by; ahh divint kna wot ya talkin aboot pet. Speak proppa like ;) :whistle: Edit: Apologies to all brains damaged in the making of this post.

That is so true. Because we’ve made adaptions to every tiny aspect of our lives in order to survive. Relying on certain ways of doing things out of necessity. When that rug is pulled from under us without warning, we are reminded and come face to face with the harsh reality of our existence...

Thank you @hedgehog I felt so bad taking mam to hospital with me. I couldn’t have done it without her. I’m hoping she’s at home resting now and taking it easy. I’m lying here, trying to figure out how and when i can next visit. My mam visits me once a week and brings food basics with her...

Its horrible. Making conversation is torture. Its the one thing that people really struggle to understand that we have a problem with. Like the taxi situation, when i’m struggling, people say ‘oh just get a taxi’ as if thats an answer to my problem of going somewhere. Sometimes talking to a...

The doctors seem certain its not his Wolfe Parkinson White Syndrome and something else entirely but they don’t know what. Tachycardia, atrial fibrillation, low BP, dizziness, pain in chest and left arm. All the questions the doc was asking him sounded like he was talking about POTS almost...

Thankyou @MeSci and to everyone else :hug:

They’re moving him over to the cardiac ward this afternoon as the monitor is still giving freaky readings. My mam has said she’ll come over to hospital with me to take his stuff over there as i’m a bag of jelly but she’s not good herself today, she was in hospital herself yesterday with a...

Thanks @Lisa108 I stayed with him on the ward until 2am, froze outside for half an hour waiting for taxi, dodging more drunks, finally home at 3.10am :ill: I think they’re just gonna observe him for 24 hours, hopefully his heart will reset itself so they don’t have to intervene, but if so it...

Luckily i got to move to where he was; not long after so that helped. He’s just been moved into a ward, its 1.30am. Theyre keeping him in for 24 hours, so i’ll be getting a taxi home soon. I have no idea if i’ll make it back here again tomorrow to visit him :( feel so useless with this damn...

I guess i’ll find out when i eventually pass out lol

Its 11pm, i’m sitting in hospital waiting room. My partner came round to mine at 9.30 to use my heart monitoring equipment as he has Wolf Parkinson White Syndrome and he was tachycardic. He’s usually okay but they’ll need to keep a check on him in case they need to shock him. I rang the...

A vaccine triggered the end of my life 20 years ago, i’ve never had one since, of any variety. Yes, i’m paranoid :nailbiting:

My first diagnosis was ‘ME type illness’ until i was upgraded later.

I’m still waiting for brain specs to be invented, my eyes are great, its the brain that can’t focus o_O

I really want to buy this book, but i’m hoping to hear from others how much brain energy is required first, so i’m holding off buying for now

I’m so sorry you’re going through this again @LucyLouWho I know how traumatic hospital is, my heart goes out to you :cry: I hope you find a way to get through this somehow. When your operation is a success and you can move again, give your friends a kick up the ass from me :mad: We’re all...

I think if this ever becomes compulsary will be the day i eventually give up entirely and see how long i can stay alive with zero money.