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Well done #ThereForME. It would be interesting to know what the response they got from the MEA said, and who wrote it.

Can you give a link to the FB post so we can see the context, please?

I haven't followed what sort of interactions on Twitter they say have been spreading misinformation about them and creating a lot of work, so I can't comment on that. Surely those people if they want to continue to be vocally critical of AfME will simply follow AfME to Bluesky or TikTok anyway...

Oh dear, Neil Riley, that is the most tone deaf, idiotic, patronising, scientifically ignorant article. How could the MEA have gone so far astray? Like many others I paid my subs to the MEA for years. No more.

Ah, OK so not AI generated this time. There are so many faked pictures all over social media it's hard to tell.

I suspect that image is AI generated.

Ah, OK, well done for trying.

That's wonderful, @Hoopoe.

Given that I think Charles Shepherd is doing an exceptionally good job producing good materials and doing media interviews etc, I'm glad he's stayed on. I have seen no evidence of anyone else at the MEA doing anything useful.

In that case I'd just point out for the sake of other readers that there's no evidence, and leave it at that. There's no way to persuade fanatical fans of alt med.

I think I would respond by asking them to provide links to clinical trial evidence of efficacy.

As far as I know Perrin hasn't done any clinical trial of his method. His PhD research was laughably bad. For me that's enough to doubt everything he says. It's all self promotion, not science.

Unfortunately it looks like they are using them to find more excuses for CBT.

I found heart rate monitoring helpful, but I agree it's something that should be used as a tool for helping to learn to listen to the body, and how we use it should be flexible and down to the individual, not regimented. Turning it into a more regimented control app with good behaviour...

I got that, my point was Perrin seems to be claiming its a popular treatment when that figure was probably based on a percentage of a tiny number who had tried his technique, and in it came out worse than pacing or resting which aren't treatments. It's all nonsense.

I got to the bit where it says it was voted 3rd most popular in an MEA survey of favoured treatments and stopped reading.

Further discussion has been moved to: UK: HealthSense, formerly called Healthwatch

Thank you @Ariel for sharing your family's experiences. I'm so sorry you are all suffering so much. :heart:

Since it's a year since the Hilda briefly resumed reporting on the stalled new review process, I've marked the occasion by posting the following on Hilda's talk page...

You're right, @Barry. We pointed all this out to Cochrane in our letter on harms sent on 17th March 2024. And still we wait.