Search results

A living review should mean any new research is added in an updated version. As Peter says, the Larun review is the opposite, perpetuating an old review by publishing the old review with a new date. I suspect in the case of the review published on this thread it's a trick to persuade the...

The question of harm bothers me here. Persuade a patient that they are ovesensitive to pain, and they will do their best to ignore all pain, including pain that needs urgent medical attention. And that's compounded if their GP thinks they are over reacting to all pain, so doesn't investigate new...

I agree. I think it's good to go for something memorable and distinctive, even surprising.

Worth a try. You could invite participants to say more in a post about their particular pattern.

ME/CFS Science Analysis seems a good option.

It's difficult to get such fine detail in a poll, as patterns for individuals will get lost in the muddle of everyone's responses, I think if you do it hour by hour. Maybe better to just ask how many hours per day upright, and ask for individuals to post their pattern of horizontal and upright...

So the GP's didn't always believe what they were telling patients, but they mostly were happy to fob off patients with lies, metaphors and nonsense.

The assumption throughout is that all the conditions mentioned, including ME/CFS are caused by central sensitisation. Use of the questionnaire:

I'll consult the staff.

A further thought. We want your blog to be read widely and remembered as a good source of reliable commentary on ME/CFS research. To achieve that I think a distinctive and maybe a bit surprising name is worth considering. That's why I like Skeptic. It's memorable. But I do see that it can give...

ME/CFS analysis, ME/CFS scrutiny, probe, audit, analysis, commentary, detective, sleuth ... I like words that suggest there's some analysis or commentary, not just a summary of some science. To me ME/CFS Science could just be a list of science papers with no commentary. It is also a bit close...

We tried that with our series òf letters which we sent to various senior people. I think that's probably why they issued a warning with their announcement of cancellation of the update, by saying any responses sent to anyone other than the complaints department would not get a response.

Especially as they are not really giving them a voice, they are giving them a chance to talk to a student who then messes about with what they say and muddles it in with other voices and draws erroneous conclusions. No thanks!

This is a Masters of Mental Health Care student thesis. It saddens me that students on such courses are clearly not taught about interpreting evidence properly, and not stating conclusions on efficacy of treatments based on 5 anecdotes. Nope. So they are researching 5 patients' beliefs, not...

There is also the question of spelling. According to google:

Do you mean your forum name, or the name of your blog, or both? I like the name ME/CFS Skeptic. It invites curiosity to read your blog and posts to find out what you're sceptical about.

I think that depends on severity. I was able to shower and dress most days and work part time when my ME was mild. I dressed every day except when crashed. Now I live in nighties.

As I understand it, the plan was to do a separate review of exercise therapy based on individual patient data from the trials, obviously including PACE. I think what happens in cases like this when a protocol is rejected and the project cancelled, is that the authors can then publish their...

The odd thing with that argument is that they have already dealt with a complaint, presumably from BPS people back in 2021 (edit: or maybe 2022/3). One of the updates described a laborious process involving multiple Cochrane committees taking a year to consider a complaint that asked for the...

We've stopped using bird feeders, and now just buy RSPB half coconut shells filled with some sort of fat with seeds in. They hang up, and can be thrown away after. The spread of bird flu across species does seem pretty alarming.