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Did the replication attempts do the same experiments to look at the same feature of NK cells?

(continued from previous post) 5. The sections on activities and limitations is both too long and inadequate The lists provided as examples of activities that a pwME finds difficult and/or need help with are very odd, focused mostly on mild ME/CFS, for example listing details of types of...

I have just sent the following letter to AfME, signed by 15 forum members, including the 5 available committee members To discuss the document and AfME's promotion of it, go to this thread: https://www.s4me.info/threads/care-and-support-plan-template-free-to-download-action-for-me.39801/...

Done

Added.

Thanks, names added.

Thank you.

Ha ha.

If anyone wants to add their signature to my letter to AfME about this document, please do so by 2pm tomorrow. You can read it on this members only thread. Once I've sent it I'll post it on a public thread.

In Hilda's November 2023 update on the Cochrane website, she said this: So they have a history of taking a year to consider a complaint, and describe it as a confidential process. I think we can guess who might have been involved in making that complaint. What I'd like to know is whether the...

We have asked them multiple questions multiple times on things that should be straightforward to answer, and for which there can be no possible justification for refusing to answer. We don't even get any acknowledgement that we've asked any questions. It's just solid stonewalling.

The latest idiocy from Sir Simon. LBC news Mental health isn’t the problem—the system is: Natasha Devon on Sir Simon Wesley’s controversial comments ... The article goes on to point out that many services for young people including adolescent mental health services, youth clubs, sports...

The latest, and briefest, communication from Cochrane: "Following up on your complaint about the 2019 Cochrane review, "Exercise therapy for Chronic Fatigue Syndrome" by Larun et al., we are still investigating and we will update you as soon as we can. Kind regards, Cochrane Complaints" Also...

I've posted a draft letter to AfME and will welcome feedback in the next few days: https://www.s4me.info/threads/draft-letter-to-afme-about-their-care-and-support-plan-document-by-peter-gladwell.39853/

I'm in the process of drafting a letter. I have just looked at the survey AfME have provided for feedback. https://forms.gle/jVrwfmEWWd3yjA6g6 It's heavily skewed not to allow criticisms of the content or purpose of the so called care and support plan. Here are the questions: 1. What about...

Here's an example of Gladwell's research on ME/CFS where he used patients from his own clinic, and showed little understanding of the effects of activities on pwME. Evaluating the ability of patient reported outcome measures to represent the functional limitation of people living with ME/CFS...

I think a key problem with the way Gladwell carries out research and invites patient participation in it is that he uses his own patients from his clinic as the participants. As a convenient group of willing patients to work with, ones from your own recent group ME/CFS clinic's 'treatment' must...

I intend to draft a letter in the next couple of days including key points raised on this thread. If I manage to put something together, I'll post a copy here before sending it. If others want to write too, don't let me stop you. There is also the AfME survey you can submit to register your...

I think that's a really important point. Who is going to read this? Nobody. Pretending such an unwieldy document written by a pwME will be useful in all these other situations is cloud cuckoo land. Which is why any care and support plan has to focus on recording planned actions by named...

That's a good point, in my sample plan I included providing a wearable monitor and checking progress in 3 months, that could be Visible or similar, and data included in the person's records. I am assuming the clinician keep records of things like weight, BMI, wearable summary data, FUNCAP or...