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He has also been very rude and dismissive on Twitter.

They are using DSQ to measure mild or severe PEM. I think that's problematic.

I have skimmed the article. The downside is they presumably only included mildly affected people, since it was done online in groups lasting 2 hours. Having said that, I like the fact that the authors describe the discussion with and between the people with Long Covid relating to managing...

I don't follow your logic. It's clear very large numbers of people have Long COVID, and of these a significant proportion experience post exertional malaise, and other ME/CFS symptoms. The comparison with Crawley's figures of the past is surely irrelevant. Those figures were from before Covid...

We don't know yet what that review will say, and whether it will have any effect.

There is also the problem that doctors treating pwME are unlikely to take notice of 'ME organisations'. And any help by medical advisors to ME organisations for individuals of necessity has to be confidential. I have criticised AfME for its close ties with BACME, specifically Gladwell and the...

I think the ME/CFS equivalent would be the hard line 'real ME' organisations who insist it's caused only by chronic infection with specific enteroviruses.

Previous article by Hannah Sharland about Simon Wessely is discussed here:

A pretty full on criticism of AfME and the MEA, some of it justified, I think, and some probably not. I agree there are big problems with BACME.

That's very troubling. Does anyone have any idea why Glasziou is so adamantly supportive of GET? I understand his background is as a GP and then a professor of evidence based medicine and he's at the heart of the Cochrane project. The fact that he and Peter White were advisors on the 2019...

There's a few psychiatrists we could name who clearly weren't listening that day.

Thank you @RaviHVJ and @Yann04 for informing us about this group. Definitely one to steer clear of.

Also Glasziou along with Peter White was one of two advisors to the Cochrane review.

That's very good news. We'll done to you for making a big difference.

I don't think it's about psychologists and rehabilitationists being bad people, or not caring, or being particularly more arrogant than any other profession. I think there are several contributory factors to the rejection of the suggestion that their work can cause harm. First, the natural...

I think it would be reasonable to ask the MEA to publish the protocol or detailed funding bid from Tyson, Gladwell et al that persuaded the MEA to fund this project. I can envisage a scenario where the bid highlighted the NICE suggestion that we need better outcome measures for clinical trials...

The MEA trustees are elected by members. https://meassociation.org.uk/about-the-mea/who-we-are/ The current trustees are: Neil Riley - Chairman Charles Shepherd Martine Ainsworth-Wells Ewan Dale David Allen - Deputy chairman There are also some associate trustees: Nicki Strong George Evans...

This is a sub study within Burton's big study that seems to have been going on for years.

I have read the paper. It seems to me that all they are doing is spending a bit longer than usual with patients to take a detailed medical history, then waffling on a bit about sympathetic/parasympathetic balance and the brain, then going on to suggested actions such as breathing exercises to...

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