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Thread with collected Wessely quotes here: Simon Wessely Research & Related Quotes

I think the new bit might be the taking away sick/fit notes from GP's and having people designated to do it instead. I gather it's already been expanded so pharmacists and some other varieties of clinicians can do it, but this seems to go further.

Thank you Maat. I am horrified by the Prime Minister's speech. He has no idea what he's talking about, and is pandering to prejudice for political reasons.

Except in the infamous chapter about ME/CFS in Fiona Fox's book about her work at the SMC. Beyond the Hype: The Inside Story of Science's Biggest Media Controversies

I'm pleased you are doing what you can to understand people's limitations. My ME/CFS is classed as borderline moderate/severe according to the NICE guidelines classification, but I can't manage zoom conversations at all. I can have short conversations with family or friends, face to face or by...

The sentence I have bolded is very concerning. While I appreciate that you are sticking to guidelines, I think it's important that researchers are made aware of harms they may not have thought of when psychological studies include asking people who are very sick to talk about the impact of...

I concur with serious concerns about the impact participation in this study may have on participants. It is no small thing, as I'm sure you are aware, exposing one's innermost thoughts and fears to an unknown researcher whose purpose is unclear, even when well. Many times more so when also...

Here's one. I hope you will read the discussion on the thread, as members point out pitfalls in the way the authors drew false conclusions: The importance of school in the management of (ME/CFS): issues identified by adolescents and their families, 2022, Cleary, Crawley et al

Edit: This post was written befor Dania edited the opening post to provide more information. Hi @Dania Ala, welcome to the forum. I think it's important that reseachers inviting people to participate in a study do so in a professional way, with details of their professional affiliation...

That was a great interview, big thanks to @dave30th and George Monbiot.

Thread here: Insights from Invasive Cardiopulmonary Exercise Testing of Patients with ME/CFS, 2021, Joseph et al You can link public posts from other social media including PR.

I agree there is no useful evidence of efficacy for GET in ME/CFS. However, as has been demonstrated time after time by surveys, there is credible evidence of serious harm. Cochrane reviews, according to their own handbook for reviewers, are supposed to include harms evidence investigation...

I don't think it's just incompetence, I think Cochrane's leaders have been persuaded to stall this new review process indefinitely and keep the 2019 review. The fact that the current editor in chief published the 2019 review demonstrates a lack of understanding of evidence. The fact that she...

It concerns me that stories like this one focus on the lack of clinics and doctors helping people recover, when the reality at present is that all the clinics in the world have no clue how to make anyone recover. There is no cure except time and luck. Though people still need validation and...

Cochrane updates Since Cochrane has not posted any update from Hilda and the IAG or anyone else this year, here's my update on what we're still waiting to hear from them. All the 5 updates, 3 in mid 2021 and 2 in late 2023, are listed and linked here Stakeholder engagement in high-profile...

It may be similar in terms of exertion. I find folding laundry exhausting - all that arm movement, sometimes lifting items with some weight above shoulder height etc. When possible I get my cleaner to do it.

Some posts that were taking this thread off topic have been moved to a new thread: Wellness Recovery Action Plan, as recommended by BACME, UK

The wellness recovery plan thing is in brackets as an optional extra, I assume for those who are asking for help with psychological symptoms. It's not part of the care plan. My point is that the care plan document already exists to cover everything this project is covering, so why reinvent the...

Thank you for trying, @Jonathan Edwards. I hope something useful will come of your efforts this time.

I've been exploring some of the current BACME guides, all of which have been updated or written since NICE 2021. Of particular relevance to this project: The BACME ME/CFS Care and Support Plan Guidance, December 2022...