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Whichever it was, all the other listed authors of the paper went along with it. I can't help wondering why.

@dave30th, I'm not assuming your comment was addressed to me specifically. Rather I assume it's a response to several posts. I've just reminded myself of my post and put it next to yours because I wanted to remind myself that I caveated my post with 'It feels like...' twice. I make no...

I think this sort of stuff is a lot about therapists wanting to keep their distance from individuals' and their personal difficulties because they know there's little or nothing they can do to help. So they fill up their own and the patients' time with generic stuff delivered in groups, so they...

I wonder whether Peter Gladwell and his colleagues, including the OT's who run my local clinic that claimed to do pacing before the 2007 guideline, but who actually did a pacing-up version, are even aware that their approach has been causing harm.

Unless you have a clear idea of the new service model being proposed, how can you design proms or other tools to assist clinicans and patients, and to test whether the energy management tools/techniques and support services are beneficial to pwME of all severities? I would love to see the...

I'm so sorry this happened to you. It's shocking but sadly not surprising. Gladwell should not be involved in developing new services if he's still pushing his pacing-up version of pacing. I looked back at PACE recently and was horrified to see they described the GET and CBT branches of the...

Thank you @bobbler for looking more at Gladwell's publications. I think on this thread we have tended to focus more on Tyson's involvement, but Gladwell is the one on the team with long experience of running an ME clinic, working with AfME in producing some of their materials, and research...

:) Yahat fordn'ny dusrpsie me. And hour uneditend post looks very much lopke mine do before editi:banghead:ing. Me too.

I think people with a rehab background who understand that rehab that involves increasing activity is not the answer for ME/CFS can do useful research on the effects of activity on our physiology, etc. We need people from multiple backgrounds to look from lots of different angles.

Discussion of the letters and this reply starts here.

It's Twitter, it's the forum for shouting about injustices. I'm glad he and Todd Davenport post threads like this. It's so heartening to have clinician researchers doing some of the shouting for us. If this was all they did, I'd be concerned, but its not.

Thread: Blog: "The Death Threat Myth Exposed", Jennie Spotila

I wouldn't want to tell people asking what is wrong with me that I have idiopathic ME or idiopathic ME/CFS. Most non medical people probably don't know what idiopathic means, it adds nothing to my explanation of what's wrong, and sounds too much, to the uneducated ear, like 'idiotic'.

It feels like they deliberately take anti-science actions like inviting Shorter and giving Walitt so much power because they know it will upset people with ME/CFS, and lead to protests. Then they can spread the word to other researchers, don't research this, you'll get attacked by patients...

It's so heartening when clinicians tell it like it is. I just wish they had more clout with the NIH.

I think there's a huge problem with using comparisons between sick and healthy people with a visual analogue scale for fatigue. Two points increase in fatigue on top of 2 points already there, ie an increase in fatigue by 2 points is likely to mean something completely different to a 2 point...

I am not comfortable with over-the-top attributions of near criminal activity to the whole medical profession. Nor am I comfortable with people with ME/CFS saying the term FND should not ever be used, and that people diagnosed with, and content to accept the name, FND for their condition are...

The article is now open access. I think it looks like an interesting idea, though before recommending it for individuals to assist with pacing, research needs to be done on patterns of lactate levels in ME/CFS and how they relate to activity when compared to healthy sedentary controls. If it...

I guess they think they can claim it will be used from the fact that they are working hand in glove with BACME on it.