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This is an interesting take on the various strategies taken against corona spread, based on something the author calls 'catch rate', basically a measure of how many people in the community you have to test to find an infected case...

Yeah, NZ is talking about significant reopening soon, too. The first easing from level 4 to level 3 restrictions was quite small and cautious - we're currently still in level 3 - but the next one down to level 2 will be a much bigger jump. At least the borders will stay closed. Still, makes me a...

@Emily Taylor Simply replacing 'fatigue' with 'feeling ill' would go a long way. No expert language required. Feeling ill also implicitly includes feeling tired so the fatigue isn't ignored but it's not highlighted either. For the impact tool another option is to simply drop the fatigue...

For those times I recommend the "grimace and grunt" method of communication ;). But in a more public setting I think it does matter what we communicate. The focus on fatigue to the almost-exclusion of everything else for the last few decades has led to the general public equating...

Looks like the Registry launch was more even popular than anticipated :thumbup: - and that's only in the US for now, the international launch is still to come.

Listen to us! Couldn't agree more. Yet I suspect they genuinely believe they are listening to us. I recall Jason seeking feedback from the wider patient community - and that could be part pf the problem. There will be an awful lot of patients who look at his 'PEM' list and say "Yes, I have that...

You nailed it @Barry. The word fatigue has been hijacked and is being used against us, often innocently through ignorance, but sometimes on purpose. The singular focus on 'fatigue' in ME for the last few decades has swung the pendulum much too far in the direction of ME=fatigue that we need to...

Arrgh! If even people who should know better appear to suggest that PEM (an IOM core symptom) is common in other illnesses, what hope do we have? No point in discussing better diagnostic research criteria if we define PEM so loosely as to make it meaningless.

According to the latest MEISS newsletter there's going to be an ME documentary later this year. That's all the information I have.

I really struggle with the ethics of this. With covid we've been hearing about how infection challenge studies (to test vaccines or to test if people are truly immune after infection) are unethical because no proven treatment exists for covid, in case things go wrong. With LP there is enough...

Ordinarily I'm pleased when a study uses CCC. Not this time. The CCC have one weakness which is the definition of PEM. It's too ambiguously phrased and can be misinterpreted as post-exertional fatigue without any additional symptoms. And I have a dim recollection of Wyller doing exactly that in...

More thinking aloud. Let's assume for a moment that fission really happens as proposed in the Prusty paper, and in a variety of cells in ME. In this case, is the problem (only) excessive fission or (also) an inability to exit fission mode again. As I understand it fission itself is a perfectly...

Thinking out loud. On the one hand we have findings showing ME mitos outside the serum act more or less the same as HC when unstressed but can't keep up when extra demand or stress is placed on them. So problems independent of serum. On the other hand we have various serum swap studies that...

Phew! That was one epic read. Maybe Prusty could only get this published as a single paper but it would have made more sense to split it into at least two, and probably more, separate papers. That would also have made it easier to write more informative abstracts. It would definitely have made...

Not sure if my experience is the same 'slump' you others are describing but I do get a daily period of feeling decidedly off. Lasts about 2 hours. Builds up gradually over half an hour or so, stays high for the next hour and gradually subsides again until I'm back to "normal". It's not related...

What a relief! That leaflet made our progress feel like one step forwards and twenty steps back. Thanks so much to everyone who worked towards getting rid of it.

Don't think this paper has been posted? One for those who like looking at graphs and statistics. Iceland has tested a high proportion of their population, including random testing, and here they're presenting the resulting data. There are the usual numbers tested vs numbers tested positive...

We sure are hoping and crossing every finger and toe and any other crossable bodypart! As @Rosie said today we were down to 5 new cases. Though that could well go up again in the next few days as another repatriation flight has just arrived but at least any infected persons on there will be...

NZ's daily new case totals include confirmed and probable* cases. Today, for example, we had a total of 9 new cases, made up of 7 confirmed (by test) and 2 probable cases. Do all countries do this, or do some only count confirmed cases - which would make comparisons (even more) misleading...

I wonder if we aren't talking slightly past each other here? It's worth noting that when it comes to viruses there's a difference between eradication and elimination. Eradication refers to the virus being gone - completely and everywhere - it doesn't exist anymore. Eradication is extremely...