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  1. Barry

    A general thread on the PACE trial!

    Who does take responsibility then, and formally provide such approval?
  2. Barry

    News from Cochrane

    Or maybe a month ago. Either way it's recent. https://cmd.cochrane.org/news/google-hangout-ketamine-mood-disorders
  3. Barry

    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    I would like to think that Cochrane may be learning from this experience, that standard responses tend to be rooted in emotive dogma rather than sound science. With a bit of luck they will be as p*ssed off with being treated like that as PwME are, and maybe gained some insight from it. The fact...
  4. Barry

    Cochrane's plans to update its COI policy

    You should not be so rude @NelliePledge ... to the many very decent horses there are in the world :).
  5. Barry

    Cochrane's plans to update its COI policy

    @TiredSam's comment was tongue-in-cheek I'm certain, as he also will be very aware who the bell ringer was.
  6. Barry

    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    Where actually is the note? Interesting to see they do openly credit Robert Courtney. Basically the authors failed dismally, Cochrane now know they cannot get away with a whitewash, and this is their version of "the withdrawal method" :p. It's sh*t. Nice ambition. Interesting ambiguity...
  7. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    That's what I was chasing down, but decided it may not be such a big deal. The score of 18 for SHAI is as they describe, just in clinical range. i.e Just out of the no-health-anxiety region. So they took a sample of people with CFS having at least some health anxiety (which I felt would likely...
  8. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    Without objective measures for both entry and outcome, claims of PF improvements are nonsensical.
  9. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    From this ... http://www.archivespp.pl/uploads/images/2016_18_3/68Kocjan__Archives_PP_3_2016.pdf ... the SHAI scoring looks to be ...
  10. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    No, there were at least 6 sessions, but don't seem to say how many total. Only that 2/10 pulled out at session 6.
  11. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    What am I misunderstanding here. To me the first sentence seems to be saying all the participants had an anxiety score > 18 and all had CFS. The second sentence see to be saying the same thing except 42% not 100%. I know I'm misreading this but not sure how.
  12. Barry

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Wording is a bit fluffy, but to me the target date pertains the the decision. If it relates instead to it having been through the editorial process, then it's down to how good they are at making decisions.
  13. Barry

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Yep. And PACE will be retracted; NICE will withdraw GET and CBT from the current guideline, MS & EC will sincerely apologies to PwME and promise to put things right; the SMC will apologise and start reporting everything honestly; and my backside will fit into trousers with a 30 inch waist!
  14. Barry

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    True, but I think we must be past the cut-off point for seeing anything on the 29th? ETA: Ah, a bit slow. I guess that's the point you are making :).
  15. Barry

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    "which we anticipate will be towards the end of November 2018" Maybe the scale is in milliseconds.
  16. Barry

    New Website on Severe ME

    Excellent. Good to see you here @Naomi10 :).
  17. Barry

    Cochrane ME/CFS GET review temporarily withdrawn

    Yes, I noted long time back that "the taxman" invariably seemed to send bad news timed to arrive on a Friday, so you had to stew (and maybe cool down?!) over the weekend before any chance of talking to them on Mon.
  18. Barry

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    I can only guess they are including the 'recoverers' amongst the 2/3 who improve? So 1/3 do not improve (so how many get worse?).
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