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  1. J

    Indeterminate pain

    Thanks. It sounds similar though not quite the same.
  2. J

    Indeterminate pain

    Thanks, though I have kind of got used to it, and usually I feel bad like this just before there is a slight overall improvement. It does depend on the phase of the illness and then within that the time of day, but then all my symptoms do. I am at least fortunate that I don't get the horrible...
  3. J

    Indeterminate pain

    No, it's not a referred pain. I can't feel any pain anywhere. But I have the sensation that I am in pain.
  4. J

    Indeterminate pain

    Anyone get indeterminate pain? As some may know, I am much more greatly affected cognitively than in terms of physical activity. My illness goes through phases. It's kind of a very slow spiral of improvement. In one phase I feel as though I am in great pain, except I can't feel the pain. The...
  5. J

    Effect of Pain Reprocessing Therapy vs Placebo and Usual Care for Patients With Chronic Back Pain an RCT, 2021, Asher, Gordon et al

    https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2784694
  6. J

    Adverse event recording failed to reflect potential harms: review trial protocols psychosocial interventions, 2021, Papaioannou, Cooper et al

    Full title: Adverse event recording failed to reflect potential harms: a review of trial protocols of behavioral, lifestyle and psychological therapy interventions...
  7. J

    Trial By Error: Good Long Covid Coverage from Atlantic; Skeptical Coverage from New Yorker and Others

    It is good that PACE is being described as discredited, and thanks to David for his work in helping ensure that it has been. I am less positive than David about this comment: We've heard that before: 'ME is real... but so are all illnesses and just because it can be treated with psychotherapy...
  8. J

    Loneliness, loss and regret: what getting old really feels like – new study 'The Conversation' Carr & Fang 09/2021

    This is a really good article about the research they are doing. It's about old age, but I think many here would recognize a lot of it. https://theconversation.com/loneliness-loss-and-regret-what-getting-old-really-feels-like-new-study-157731?utm_source=twitter&utm_medium=bylinetwitterbutton
  9. J

    Guardian Article on NICE pause

    Jonathan, thanks for all your work with these journalists.
  10. J

    Sense about Science (UK) and subjective outome measures

    It is just my interpretation. It's based on the people involved and especially Tracey Brown who had very close ties with Michael Hanlon and was in my view the prime mover behind the Sunday Times article about harassment. They refused to support Alem Matthees and they have also previously broken...
  11. J

    Sense about Science (UK) and subjective outome measures

    I think these lines by SAS are fascinating. My own interpretation is as follows, given their political and sociological views: 1. Support for current model now untenable given criticism of obvious scientific flaws by people whom they would normally look to as allies. Role of Trevor Butterworth...
  12. J

    What we're not being told about ME - UnHerd (Tom Chivers)

    Knowing how thorough Tom is, I wouldn't be surprised if he has indeed read the 2011 paper.
  13. J

    Harassment claims in the media and social media.

    I did actually start to poke around in this with FOIs. I'll dig them out in next couple of days.
  14. J

    What we're not being told about ME - UnHerd (Tom Chivers)

    He was scornful of Chalder's response.
  15. J

    What we're not being told about ME - UnHerd (Tom Chivers)

    It is good, I think. He is very sympathetic. He also has a very good reputation as a science writer for coverage of crap studies. It's interesting it's in UnHerd as it's a bit 'contrarian' and a lot of readers will instinctively be inclined to Spike crowd. Though not Tom, I should add. It is...
  16. J

    History of NICE decision to set up 2020 Committee

    These are all good responses. Thank you. It is too late now for this article as he was finishing it when I asked. However, I do think it's useful to have the background on this, so am going to change the thread title.
  17. J

    History of NICE decision to set up 2020 Committee

    I think he's going to say that it came after 'patient pressure' and the 'The strong message from stakeholders' is enough of a source for him to justify it. Thanks again Andy and Sarah.
  18. J

    History of NICE decision to set up 2020 Committee

    Thanks. That helps with the history.
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