Search results

Developing services for long COVID: lessons from a study of wounded healers Emma Ladds, Alex Rushforth, Sietse Wieringa, Sharon Taylor, Clare Rayner, Laiba Husain and Trisha Greenhalgh https://www.rcpjournals.org/content/clinmedicine/21/1/59 Apparently, learning lessons does not involve...

The UK office of national statistics has published its most recent update of LC data: https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/healthandlifeexpectancies/adhocs/12788updatedestimatesoftheprevalenceoflongcovidsymptoms. In Excel. Because reasons.

Anybody likes podcasts? 13 min. https://www.bbc.co.uk/sounds/play/p094nz5x

A what in the what now? No discussion of orthostatic intolerance? The hardest part of science is asking the right questions. This ain't it. I don't know who needs to hear this but continuing to do very low quality and scope poorly-observational research on large problems is entirely pointless...

January 28. https://emergency.cdc.gov/coca/calls/2021/callinfo_012821.asp For some people, the effects of COVID-19 can last well beyond the immediate illness. Patients and clinicians across the United States are reporting long-term effects of COVID-19, commonly referred to as long COVID...

Right there with Sharpe tweeting about accepting when you make mistakes. I don't know if it's truly a complete inability for self-reflection or what? No, obviously the solution is to block every pwME raising that point. Now that is good public health communication!

That's in addition to the NYT magazine article? https://www.nytimes.com/2021/01/21/magazine/covid-aftereffects.html Despite the tense used to describe the failure, at times suggesting it was in the past, it's very well-researched. Edit: looks like it is. Excellent article!

I'd say this qualifies: And false attribution syndrome strikes again. As usual. There is no can't, only won't.

And if we simply stopped bringing sick people to the hospital they would stop dying because clearly people are dying in hospitals at abnormally high levels.

Mild shock No. Way. What about happy thoughts, though? What about happy thoughts?!

So far nothing impressive out of those clinics. As expected. Austerity policies only look cheap thanks to selective accounting, they are actually the most expensive. Language in this thread suggests the referrals are for "fatigue" alone. Of course, systems built on failure will keep on failing.

Definitely way too much is being made of the UK LC clinics without considering whether they are any good. It's assumed that they must be good. Very flawed thinking.

The label was largely created on Twitter and entirely from patients, no medical professional was harmed or involved in the creation of Long Covid as an entity and the patients knew nothing of ME, or CFS, or chronic fatigue, like most of us (who apparently have "unhelpful beliefs" about things we...

Everything I see suggests to me that leaving health care entirely to medicine has been a mistake. Health care is about far more than just medical practice and I think this is where the flaws mostly lie, that leaving people trained with one skillset to do many things unrelated to their skillset...

Confirms what has been obvious since... forever: that CBT is an instrument that can be used to slightly change answers on questionnaires, with greater "efficacy" on changing answers by crafting deliberately vague, non-specific questions and the more rigorous methodology is, the smaller the...

This, going out of their way not to mention the elephant in the room, is frankly the final straw I needed to confirm that without LC, the NIH never had any intention whatsoever to do anything serious about ME, that even with the most significant opportunity to ever present itself, they seem more...

This document was discussed earlier in the thread: Possibility of ME or PVFS after COVID-19, Long Covid Returning to physical activity after covid-19 https://www.bmj.com/content/372/bmj.m4721 GET, assumed to be deconditioning. Sensible caution about some co-morbidities but otherwise it's...

Moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid Just want to mention about something that could be pretty significant. Joe Biden has announced a major change to the high-level breakdown of the US government, elevating a science office to cabinet level, giving this...

This is one of the main consequences of keeping LC and ME separate. There are pros and cons but the cons so far will have wasted the first year and appear on track to go past this. It's impossible to take PEM into account while keeping ME locked away. It seems to be more important to keep us out...