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Immune determinants of COVID-19 disease presentation and severity https://www.nature.com/articles/s41591-020-01202-8 Apart from the differences in severity among patients with acute COVID-19, it is now clear that a number of other outcomes are possible after an initial infection with...

Yesterday, PBS Newshour had a segment on Long Covid. No mention of ME, still at the personal interviews stage. I am really looking forward to some investigative journalism some day, individual interviews are a lazy way to report on something affecting millions. VICE news also posted a...

Is it? Only person we ever heard is involved is Bastian. Who are these people and why was there never a public announcement or something to staff that group? Or is this false information?

The Austrian psychosomatic zealots are at it again. https://www.bhswien.at/iii-med-abteilung-psychosomatik/angebot/post-covid-19-programm https://translate.google.com/translate?hl=en&sl=auto&tl=en&u=https://www.bhswien.at/iii-med-abteilung-psychosomatik/angebot/post-covid-19-programm...

So now Greenhalgh has been given a platform to spread disinformation about us, continues to be good pals with the creators of this disinformation. And she was definitely involved in the LC guidelines, which happen to completely miss out on just that. She actually lied about the PACE trial...

Literally magazine quizz level of pseudoscience. Which Beatles are you or what you had for breakfast says about your negotiating style. It's the firm conviction these people have about being able to read other people, when they absolutely cannot, that destroys the entire system. Comedians...

Wait, I thought people with chronic illness aren't supposed to do that. Weird that they would "enable their sick role".

Honestly, same reason why some people are fascinated by stuff like telekinesis. It's magic. People want to believe in magic, even smart people. Magic is amazing. Sufficiently advanced science is indistinguishable from magic, but science is hard. Just magic is so much easier.

Long Covid: Virus 'like Russian roulette' for young and healthy https://www.bbc.co.uk/news/amp/health-55635451 Not much new to this same old story that may as well be about ME, or fibromyalgia, or dysautonomia, or etc., if not for the context: It would be more accurate to this that this was...

Haha. What? No. BPS outcome-seeking does not count as research, they are not searching for anything. The rest has been massively underfunded. Not even 1% of an adequate effort.

Really sounds like they tortured her until she took the strategy of lying to get out of more torture. Or maybe they destroyed her brain so much it just removed the worst of the sensation. Cingulumotomy is a type of lobotomy. I am continually amazed at how absurd this entire field of medicine...

It also does not factor in externalities, the hidden costs borne by others (think pollution, it's cheaper for a factory to dump toxic chemicals in a waterstream but someone will have to pay to clean it up at some point), or the opportunity cost, the benefits lost by making choices that close the...

How do we get through them that it is not the government or the public that has to be convinced to take this seriously? That it's medicine that needs convincing and that it is impossible to do so without acknowledging and fixing the fact that tens of millions already live with these exact...

"This is scientific because I like it" is quite the rhetoric-based 17th century argument. They use the thing they want to prove to prove that they are right. It's a perfectly circular argument. How do serious people who work in the field of health care not see that? The reviewers. The editors...

Right. Totally. Transformed entirely. Sure. Uh uh. Those are truly serious people talking about serious things. Not even smart enough to not point out they are proposing a change, a finality, despite having no evidence for it, as if the process of fabricating the evidence is just a formality...

Not sure who this is, seems to be the journal of a Chicago-based medical society. There is an article on pages 21-22 but it's hard to read in this format, will probably not work well on phones. Includes quotes from Nath and Lipkin, discusses ME/CFS and even presents Lipkin as an ME expert, which...

A "new" chronic illness, made up of old diagnoses. Hence why POTS is both brand new but also old, I guess? And chronic pain. Also new. Neurological symptoms, also brand new. Never before heard of those things that have names and stuff. Those dysautonomia patient organizations? All unheard of...

I have a lot of that, mostly started about 2 years ago, or wasn't really obvious before. Especially joints in the morning, very red and itchy. Sometimes seems to bleed under the skin, mostly near arteries (or veins, whatever). Neck too, kind of zebra stripes that come and go. No idea but...

Boy is this Long Covid thing really putting a wrench in the whole "illness label" nonsense. Oh yeah, people definitely "want" the fashionable illness label. Absolutely. Yes. Smart. Very smart people say this. I'm sure they will "clarify" this some day, insisting they have always said those...

They are blatantly lying about the "other studies" that showed benefits from exercise. No such studies exist, they conclude no impact on overall health, the only noticeable thing was slightly improved performance by some on the limited tests used to measure performance, like 6MWT, not controlled...