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She is still stuck on the "ME is fatigue and nothing else", sadly. Hard to compare to something with a fully distorted picture of it.

If they avoid any mention when it counts, I don't see how they would not avoid working the issue entirely during the entire research program. This is what lack of courage looks like. No leadership to be found, as is tradition in medicine. The denial is clearly strongly motivated, it's not an...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7889402/ Abstract In late 2019, a novel coronavirus SARS-CoV-2 (COVID-19) spread unchecked across the world's population. With tens of millions infected, the long-term consequences of COVID-19 infection will be a major health care focus for years...

Canada's 'long-haulers' without family doctor need primary care: medical association https://www.ctvnews.ca/health/coronavirus/canada-s-long-haulers-without-family-doctor-need-primary-care-medical-association-1.5318564 I'm not sure which way to take this but I don't think it's meant in a good...

In Canada we don't have a national health care service, rather we have national standards that provinces are responsible for implementing. So we don't have anything as structured as the NHS or NICE to push through something like BPS. It either happens organically or it doesn't, but abusing...

Ah, found it. In a footnote. So it's fatigue alone using FSS: So: junk. Or not relevant to ME, CFS, ME/CFS or any variation thereof.

Heh. I noticed this one, it could have been somewhat useful to know the proportion of "recovered" from MERS who fit CFS diagnostic criteria, or frankly any general health evaluation, but frankly this study is too much of a mess to tell anything. No idea why they focused on "suicidality" instead...

As far as I am aware this is about most of it, merely acknowledging it exists.

Probably has to do with the architecture of the health care systems, the US simply doesn't have this unified thing that can push through a single-minded idea like Wessely, Gerada and others with influence did through the NHS. US medicine is simply too large to have a small mutual admiration...

This questionnaire actually looks useful and competent, including for ME. Thread: And this one also: This kind of questionnaire was discussed a few times prior. Here as an example...

From overviews it appears interesting but because, I guess reasons, it's copyrighted so it's hard to assess. Most health questionnaires are copyrighted. And cannot be accessed because of said copyright. Normal things. The incentive system in medicine is completely broken, essentially built for...

https://www.mdpi.com/2073-4409/10/2/386 Abstract As the SARS-CoV-2 pandemic continues, reports have demonstrated neurologic sequelae following COVID-19 recovery. Mechanisms to explain long-term neurological sequelae are unknown and need to be identified. Plasma from 24 individuals recovering...

Doubtful we'll really know for sure, as whatever was given to the soldiers is classified and by the time it's declassified, it will be too late to research the subjects. I'm not sure about the Sarin. It's far too many people affected, it could not have possibly spread enough to affect so many...

I think they are. I can somewhat remember an online seminar they had and it included long haulers (but my bad memory though...). I just can't use it yet so I can't verify. I don't think it does a history, though, rather than a journal of current symptoms. We have so little information about...

When all is said and done, there won't be much left of Wessely's careers, awards and all. https://www.dailymail.co.uk/sciencetech/article-9273765/Gulf-War-syndrome-not-caused-depleted-uranium-munitions-study.html This lack of understanding, brought to you in part by Wessely "most satisfying...

Almost a third of people with 'mild' Covid-19 still battle symptoms months later, study finds https://www.cnn.com/2021/02/19/health/post-covid-syndrome-long-haulers-gupta-wellness/index.html Posted mainly because of the reach this can have on CNN. Frankly I find the feigned optimism...

The surveys used for this paper have been open-sourced: https://figshare.com/articles/online_resource/Questionnaire_to_Characterize_Long_COVID_200_symptoms_over_7_months/13642553. Haven't checked if it's mostly ready-to-use including how to analyze them but it would be incredibly useful to do...

Not necessarily well-known personally but there is a growing number of professional athletes who are struggling, some to the point of putting their career on hold. So far it's more than a handful in professional hockey, including a high-profile prospect who was about to start his professional...

One might even say that's the whole point. It's me, I'm one saying that.