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The response from medicine to LC frankly shows the exact opposite, that all the progress we hoped we were doing was actually mostly an illusion. It can pay off with LC, it set the ground for the NIH to be able to do it right, but without LC we were fully stuck there for the long run and I'm less...

I speak from experience about the latter ;) Nobody took the communication classes seriously in my computer science program. Turns out it's super important. Still, nobody takes it seriously, everyone assumes they communicate just fine because they know words and communication is just using words...

The Cochrane exercise review. Of course. Because the warning that it is under review (if it really is) is well-hidden. Cochrane keeping it published is doing enormous harm. And it uses several similarly flawed Cochrane reviews. The lawsuits, oh the lawsuits. Cochrane deserves to be sued out of...

Not sure what it says about Howard that he hopes the NICE evidence review, completed several months ago, will take notice. The deadline has long passed. The attention to details is... not great, but definitely on brand.

Yup. He went on a trolling spree a few months ago and ended up mass blocking many of us.

That's the one benefit of rock bottom: there is no bottomer point, it is the bottomest of points. Seeing medicine's reaction to LC really sells the point that the BPS ideology is fully embraced at a level I did not think was so total. It can't really get any worse. It may not get better but it...

All about style of communication, not substance. Because there is no substance, so only style. This is basically sales training. Seriously this is the kind of stuff they actually teach to salespeople. I even noticed some papers advising the more superficial stuff like smiling a lot and having a...

All eyes on the NIH, literally the only hope. If they fail, long haulers are doomed with us. Incredible. Instead of moving forward medicine is pulling heavily backwards, receding into the belief system. I don't know why I expected better. Medicine is broken beyond any chance of repair.

It explicitly advises CBT and GET. Complete disaster. Basically the Wessely BPS model in full.

Long covid: WHO calls on countries to offer patients more rehabilitation https://www.bmj.com/content/372/bmj.n405 Not much, just a recap of the WHO panel but it has useful quotes from Hannah Davis about PEM, which rehabilitation programs still mostly doesn't even know about. No one has yet...

I imagine there's supposed to be some sort of coherent idea here but I can't make sense of it, all I see is a bunch of labels and boxes with arrows thrown with no discernable sense.

Aside from lack of credibility and a useless primary outcome, the lab work is very basic and has already been done. This is not their strength, whatever their strength actually is. Like Wessely doing a few immunological tests and calling it a day. Many studies have already gone into far more...

Hah! Looks like it happens a lot, they even mention it several times in their about us:

Pretty good. It's really fortunate that this happened at the tail end of years of efforts. Even though those efforts were not accomplishing anything, it set the stage for the NIH to be the only serious player. So far I have seen nothing elsewhere that doesn't reek of BPS, though most countries...

Every comment is impertinent or just plain rambling. Really earning their national incompetence service title here. I have no idea what the bit about Larun is doing there, reads like personal grievances. Especially as it changed nothing of substance. Even more that the NICE evidence review...

Kaiser unfortunately never changed course. But reality has a way of asserting itself. (Edit: turns out it's a different Kaiser, not Soze, though)

Love to show my inability to understand cause and effect, or what the word "cause" means, or how transitive properties work. Everything must be at one degree of separation and no further, if something is a cause but itself has a cause then only the proximate cause must count (as long as it...

"He could do that after". After what? It's ironic that Henrik doesn't read what people write. Maneesh has been the peak example of calm stoicism and doing exactly what the BPS cult sells. If he'd bothered to read any of it, including the damn tweet he's spamming on. And of course Garner wrote...

I too love to just put labels and boxes in random orders to make what I guess must be some kind of point here. Not sure how a CBT expert is also an expert in chronic illness but whatever it's not as if labels matter or something.

Not directly but this slide was mostly about ME research that could serve as a foundation: And if I got this right the Dr Ryan mentioned here is the executive director of WHO, which certainly would change things: As let's be honest here, almost everyone motivated towards ME and chronic...