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  1. rvallee

    UK - NHS England online tool and clinics for long Covid.

    It's been deleted so anyone knows what the debate was about?
  2. rvallee

    BPS attempts at psychologizing Long Covid

    This whole anchoring with ICU patients on ventilators is really getting boring. This is very easy to falsify and people just don't bother because they want to believe. 'Brain fog' following COVID-19 recovery may indicate PTSD...
  3. rvallee

    United Kingdom: News from Forward-ME Group

    :giggle: It's beyond time the SMC's role and mission be reevaluated because it was literally created for the exact opposite purpose it is currently serving. Sorry, I meant self-serving. The impetus to create it, so that there would be a reliable, neutral, source of information that would not do...
  4. rvallee

    Emerge Australia Health and Wellbeing Survey 2019

    I'm actually surprised the numbers of below poverty are that low. I'm pretty sure there's an undercount of the worst off and that this is basically an optimist version. Turns out the currency exchange rate for "attention" is... zero. Just straight up zero. Who knew? Other than everyone, obviously.
  5. rvallee

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    As informal groups go, this is a pretty good one. Better than some formal groups...
  6. rvallee

    BPS attempts at psychologizing Long Covid

    The exploitation of Long Covid https://www.spiked-online.com/2020/10/06/the-exploitation-of-long-covid/
  7. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Of course. I mean. Of course. The argument here seems to be: people are paying attention to Long Covid and I don't like it. What's interesting is that it actually proves the point that "attention" is entirely worthless by itself. The exploitation of Long Covid...
  8. rvallee

    UK - NHS England online tool and clinics for long Covid.

    Still not sure if this is good or bad news.
  9. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Mount Sinai’s Post-COVID Care Center For 'Long-Haulers' Slammed By Patient Demand https://gothamist.com/news/mount-sinais-post-covid-care-center-for-long-haulers-slammed-by-patient-demand
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    LC patients have been saying that for months, plainly admitting they stopped using the app because it didn't fit their symptoms and that it was annoying to manually enter the same thing day after day. They didn't listen and it affected the ability of their program to continue, distorting data...
  11. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This was a pretty good editorial but although it started off well, pointing at the massive failure of how medicine has dealt with ME as a blueprint of what not to do, it presented the problem with a past tense, almost suggesting the distant past, not actually stating that this failure needs to...
  12. rvallee

    UK - NICE guideline on Long Covid

    Just a question of which disciplines. Teams made up of neurologists, immunologists, virologists, rheumatologists, internists and the like are definitely good. Teams made up of psychologists, occupational therapists, CBT zealots and LP practitioners, not so much. Thing is everyone understands...
  13. rvallee

    Coronavirus - worldwide spread and control

    And to add to this, the CDC offered to do contact tracing and it was turned down.
  14. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Doctors with long COVID Looks like doctors subject to the patient side of medically unexplained symptoms are not particularly impressed by the concept. From the British Medical Association. This article basically debunks every single one of the tropes that had been pushed on us for decades...
  15. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    History repeats itself because the people who learn lessons the hard way are not at the table to prevent the same mistakes from being committed by the very same people who committed all the same mistakes before and reject the very premise that they made any mistake whatsoever. How can we learn...
  16. rvallee

    Behavioural modification interventions for medically unexplained symptoms in primary care: systematic reviews & economic evaluation, 2020, White et al

    Honestly this whole thing may be the most incredible example of lies, damned lies and statistics ever. It will live in infamy, used for decades as an example of how to abuse mathemagics in order to fabricate evidence for a teleological ideology. Politicians and governments, business also, lie...
  17. rvallee

    The biology of coronavirus COVID-19 - including research and treatments

    Neuropathology of patients with COVID-19 in Germany: a post-mortem case series https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(20)30308-2/fulltext
  18. rvallee

    UK - NICE guideline on Long Covid

    This is frankly a supply-side approach. It isn't based on need, it's based on supply, on what the health care system wants to offer and provide for. A solution in search of a problem that completely sidesteps the actual problems.
  19. rvallee

    UK - NICE guideline on Long Covid

    Very weak. No one has yet argued the idea behind rehabilitation other than deconditioning, which is clearly absurd in this case. It's assumed without basis. There is no useful evidence for any "interventions" that are effective at any of the symptoms. We have to know what's going on before we...
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