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6 months? If only.

Interesting thread posted on Reddit: [Serious] People from Reddit who survived Corona, how has your daily life changed? What are the side effects after? : AskReddit This is a default sub with millions of users so does not bias in favor of people with Covid or long Covid. Gives a more generic...

Wait it's not hysterical vapors?

Both a curse and a blessing, but it's the sheer mass of people affected that makes this a disaster but also makes it possible for the disaster to end. Had infections been significantly lower, this group would have been thrown down the memory hole like the rest of us. Even the massive scale...

Yeah that's why I thought it was interesting. That the people who reject ME, or at least at first and are struggling to accept the implications, still say the exact same things for the exact same reasons about the same issues as we have, going back decades. Regardless of how the doubters view...

Plus ça change... The abuse of language is one of my personal pet peeves in this. There is no shared understanding without a shared vocabulary and there can be no shared vocabulary with people who use language as a weapon in a statutory setting they fully control and intend to abuse. As for...

Delusional

Saw this video last night and it's kind of relevant. It talks of stigma and uses COVID (?) and AIDS as an example, even though almost all the COVID-related examples are people using COVID as an excuse for political persecution, rather than actual stigma of the disease. What is shows is how...

To get an idea of the perception of long Covid in the general public, one of the studies got a lot of attention on the worldnews sub-reddit. There is some healthy respect for the most part, even some appropriate respect for how serious ME is, or at least "post-viral fatigue". Some dismissive...

Kind of hard to recognize a lion when this is how it has been described to you: Although that's probably not fair, that is 10x closer to a lion than the BPS version of CFS is to ME.

The implication seemed to be that it is excessive rest that causes ME. So, basically the exact opposite of reality. Missed it by the whole field.

Same. I've read thousands of accounts of ME over the years. I've read thousands of post-COVID over the last few months. No doubt in my mind. There is additional stuff particularly to COVID but the overlap is no less than 90% and ME likely explains most of the severe symptoms for most of the...

I've seen many anecdotal reports but nothing formal. It is however reported. But then again so is exertion intolerance and most medical authorities are still clueless about it so not a surprised they'd miss something seemingly trivial (I assume?).

Maybe I'm weird, but I prefer scientists who have mastered object permanence. This is just mental masturbation. I don't think anyone should pay attention to it, just self-important people who think their thoughts are just as good as real evidence, talking about things they neither understand...

I had a slow and progressive onset, going for years before it got serious (with something I would actually call mild chronic fatigue for most of my teens), so it's hard to tell but it's mostly the same as the initial symptoms, just much more severe. Basically I don't have a short period of...

Very. Frankly there is little to no progress to make without. Barring massively increased funding to make up for the inherent complexity of this problem, and even then. The AIDS model is the one to follow.

And the copy-paste research machines copies and pastes on. The machine is also clearly deaf, as it is not listening to anything the patients are telling them. But all the machine does is copy-and-paste, and that is how the machine is judged, and so the machine is good, because it copies and...

I frankly don't mind this temporary attempt at segregation, ME is a black hole of criminal neglect and despair, it will lead nowhere anyway, but it would be fantastic if it lead to the acknowledged debunking, in fact, of the stupid "illness seeking label" trope that is widely cast on us. It is...

The irony of medical professionals rejecting ME, or even PVFS, because they reject a psychological explanation for their illness is predictable and illuminating. Especially the language: "this is real", "this isn't psychological", "this isn't just anxiety" and, obviously, "this isn't just...

Long Covid: What is it, what are the symptoms and what help is there for sufferers? https://www.itv.com/news/2020-08-12/long-covid-what-is-it-what-are-the-symptoms-and-what-help-is-there-for-sufferers Denial has consequences. No excuses for this failure. It's the same failure going back...