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My N=1 of that was: initially: minor short-term improvement but more malaise; long-term: nope nope nope. It did not reduce symptoms, just made it a bit easier to power through like coffee will push back a bit of sleepiness for maybe 30-60 minutes. It's a dead-end, metaphorical band-aid on a wound.

Delays in diagnosis for common neurological diseases are already several years on average. This will make it all so much worse. It's baffling that people whose job it is to think about that don't see it (or aren't concerned by it, hard to say which). Especially as they harp against biomedical...

Good to hear and understandable, especially given how important clinical guidance is during a pandemic and how much work that must involve for you. But at least it ties in nicely given the massive overlap between ME and Long Covid. Although Cochrane's behavior on the existing reviews remains...

I see this a lot in my Google search results. It's automated content.

Disappointing that they use CFQ (it encourages its continued usage) but at least they asked about more symptoms than usual. Bit weird to ask about painful lymph nodes, rather than, say, enlarged. Mine are never painful but usually enlarged, and often tingly. It would be really important to...

The exact same process behind the 1/5 with Covid experiencing "mental health" symptoms: Patients present with many symptoms No tests exist for symptoms Symptoms are dismissed and instead marked as either of: fatigue, anxiety or depression Trawl through medical records and find many mental...

So... publishing a review with very low quality evidence is not a serious error. Interesting perspective. In the sense of "may you live in interesting times" but still. I would be interested in the precise meaning of "editors have reviewed". How, exactly? Experience tells us that when such a...

Good response but this part here... this is how it's always done. There is no other process by which this model has ever been proposed or taken hold. In the end it's time that cements those baseless claims, if technology cannot stop them in their tracks, but this is how it's always done...

Not terrible but they have clearly not looked much beyond their own experience, it's very limited. Hard to expect much, but it's definitely a good thing not to wait for medical authorities, they have clearly no intention of doing anything to risk their beloved herd immunity. Doubtful this goes...

Wait they get paid to write grants? Hell this is just to get prepared to write a grant. No wonder they push so many out and win so many. Usually this is all risk and little reward for researchers, months can be spent writing a grant that is simply rejected on lottery. Meanwhile the acceptance...

Clearly just trolling but it's rarely a sign that one is winning when despite having enormous influence as a professional they are playing dumb on purpose about a topic they have been claiming expertise for decades. So at least there's that. I wonder how it plays. She's obviously playing dumb...

They would, but somehow there is a belief that medical professionals must vet information even if they cannot actually do anything meaningful about it. Even if all it means is reporting what patients reported, without that magical step the data are considered useless. A good example is the Body...

Honestly the degree of misunderstanding of what fatigue means is pretty much at the level of doing a report on youth in Asia instead of euthanasia. It basically means nothing at this point. Simply not talking about the same thing.

Nice passive voice blaming patients for medicine's failures. The patients lead to those problems. Sure.

The amount of assumptions here is excessive. So many confounding factors and a very bizarre concept of trauma.

Wow. I mean. The logic behind this is... wow. It only emerges when we look, because outside of epidemics and large outbreaks nobody looks (so how could anyone know?). Therefore it only happens when we look. And since we only look when it's very large then it only happens when it's very large...

I especially love this because no country has made significant efforts to count LC so this claim is especially misleading. The numbers are expected to vary, especially as some countries simply refuse its very existence. Even the UK has vastly different numbers depending on who counts and how. As...

One of the only scenarios that make sense is that a lot is happening behind the scenes to undo the NICE guidance and Cochrane is taking a back seat to whether it succeeds. It's not as if the evidence grading will change, it is done. So Cochrane is not working from evidence, rather on what can be...

I could not pass the delicious irony: The least self-aware rock of my tiger-repelling rocks collection is vastly more self-aware than this. Seems typical, Sharpe and Wessely do the same. For easier viewing, not sure who the "skeptic" is:

He never actually said it out loud, though. The "physical symptoms of depression" is by far the most common interpretation I see in the wild when physicians voice their opinion about ME. He could have come out and said it, it would have made some difference, especially if his followers echoed...