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  1. rvallee

    Health Conditions and Psychotic Experiences: Cross-Sectional Findings From the American Life Panel, Oh et al, 2021

    I will always marvel at the inability of medicine to come to terms with the idea that people can have more than one medical problem at the same time. It's like there is this firm belief that life, somehow, maxes out disease at one and any extra illness beyond one disease simply cannot be. This...
  2. rvallee

    UK - NHS England online tool and clinics for long Covid.

    Long haulers are slowly getting acquainted with the freight train trolley being sent their way: One twist of the trolley problem that never seems to get considered: what if someone actually wants to put the trolley in the past of most harm? What if the goal is to hit as many people as...
  3. rvallee

    Exploratory study into the relationship between the symptoms of CFS/ME and fibromyalgia using a quasiexperimental design, 2021, McKay et al

    Yes, but how do they rate on magazine questionnaires about which Beatles they are? Is it more significant than rating which K-pop band they are more alike? Or what their zodiac sign says about their career prospects. Results will shock you! This practice of using arbitrary questionnaires of no...
  4. rvallee

    Editorial: Concern for Covid-19 cough, fever and impact on mental health. What about risk of Somatic Symptom Disorder? 2021, Willis & Chalder

    They can't even provide any evidence that this is of any use beyond the fact that people, mostly themselves, have been using it. It's the same recycled drivel they have been saying for 3 decades. Completely unchanged. I especially love that they quote this: “excessive, disproportionate or...
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Forever Disease: How Covid-19 Became a Chronic Condition https://newrepublic.com/article/161102/covid-19-long-haulers-chronic-disease-health-care Has an ironic quote by Greenhalgh: Yes, only those 3 conditions. And no other. Not even Lupus. She really started this with a major deficit of...
  6. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Pretty much literally: don't ask us about the stuff we publish, we just publish it, we don't actually vet any of it. Cochrane seems to mostly be a platform for self-promotion, frankly. How it is still considered the gold standard of clinical evidence says a lot about why clinical outcomes have...
  7. rvallee

    Dr Norman Swan: ME/CFS is more psychosomatic than long-COVID

    Not impressed at all. Still mostly BSing. Post-viral syndromes are not at all well defined, what the hell is he talking about? Either he has no idea about the history here or he is lying his ass off. Again. All he's doing here is arguing that in his opinion ME has nothing to do with infections...
  8. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yeah Cochrane really looking like a clown factory here. No wonder medicine has completely stagnated at improving patient outcomes when the standards are this low.
  9. rvallee

    Psychiatric conference in Norway nov. 2019 themed "Stressology" (Wyller among lecturers)

    Nobody wants to be known as the phrenology expert after phrenology got discredited. Same energy. Professionalism only goes so far, their self-interest is diametrically opposed to ours. Where they succeed we suffer and die and where we are freed from this nightmare theirs will begin. Not that it...
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I don't think this... whatever this is... deserves its own thread. Long COVID and the importance of the doctor–patient relationship https://bjgp.org/content/71/703/54.full Helen Atherton, Tracy Briggs and Carolyn Chew-Graham Unfortunately de-medicalizing chronic illness means there is no...
  11. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Continuing on that thought, it's worth keeping in mind that the current vaccination strategy will eventually make LC the dominant problem. Not that the strategy is bad, but without recognizing the massive public health crisis LC represents, that once the more vulnerable populations are...
  12. rvallee

    Trisha Greenhalgh on ME/CFS and Long Covid

    Important to emphasize. The process of dehumanization, of calling us mere trolls and campaigners, shields the fact that they are talking this way about sick people. Whatever framing they put, whether they want to push their psychosomatic tropes, they are still talking about patients, about real...
  13. rvallee

    Are there subgroups of chronic fatigue syndrome? An exploratory cluster analysis of biological markers, Asprusten et al, 2021

    Oh yeah really nice that this self-proclaimed expert is noticing *checks note* the hallmark symptom of the disease he claims expertise in. I guess they don't have a choice to talk about it now that the cat's out of the bag with LC. Funny that it says "than previously understood" when they are...
  14. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    I don't know where else to put that, it doesn't really deserve its thread. Or maybe there is a thread and I couldn't find it. But malingering is very much part of the question here, especially given how it relies on skills no human has ever possessed, is as credible as claims by anyone that they...
  15. rvallee

    Dr Norman Swan: ME/CFS is more psychosomatic than long-COVID

    Hey, it's not as if this has real life consequences or anything. Oh, wait. It does. Uh. Weird. Do no harm... or else: nothing? Absolutely nothing. OK, then.
  16. rvallee

    Trisha Greenhalgh on ME/CFS and Long Covid

    I find it hard not to conclude that much of this is an act played out publicly to an audience of fellow physicians who support anything they do no matter what, as evidenced by their twitter feed. They are trying to influence their peers into siding with them, abusing their influence for personal...
  17. rvallee

    Dr Norman Swan: ME/CFS is more psychosomatic than long-COVID

    He insisted that ME (well, CFS to him) is just fatigue and nothing else. So he genuinely has no idea what ME is at all, he's just spewing what eminent people he trusts told him and hasn't bothered reading anything that doesn't confirm it. So not hypocritical, just incompetent. After all he's...
  18. rvallee

    Trisha Greenhalgh on ME/CFS and Long Covid

    It's certainly nothing unusual when comparing to how most talk about us on medical forums. Or about patients in general, frankly.
  19. rvallee

    UK - NHS England online tool and clinics for long Covid.

    This would be called extremely lossy compression in information theory, it loses 90%+ of the information. Think of a JPEG at 50% quality, applied 10x successively, and the resulting image is the reference image. It is impossible to do proper science while simply removing almost all relevant...
  20. rvallee

    Updating the National Academy of Medicine ME/CFS prevalence and economic impact figures to account for population growth and inflation, 2021, Jason

    Taking the low-end of $36B per year, with the US representing approx. 20% of the world's GDP means roughly $180B per year (with a high over ~$250B). Obviously economic productivity is not evenly distributed but taking the lowest estimate mostly takes care of that. That means about $1T every 5-7...
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