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So, do they actually destroy the gut's microbiome prior to FMT, or do they just empty the gut? This is kind of glossed over in what I've read and I'm not certain that they are the same thing. FMT can frequently cure C. difficile infection, but C. diff is not normally present in the gut...

Well, my first ME symptom was an acute attack of "vertigo," and balance problems continued to be a major symptom for years afterward. Still, it's going to take a whole lot of convincing for me to accept that all the subsequent symptoms were just downstream effects from a problem of the...

Can you imagine telling AIDS patients, in the era before effective treatments were available, that their activism was an indicator that they were not all that sick? [It wouldn't shock me if that happened, though.]

They divided the number of messages posted on a selection of Norwegian health forums in one week by the number of thousands of people in Norway who have the condition. This seems to be how they are arriving at ME having "more than ten times the relative activity of any other disorder or...

My impression is that, when he said he felt like he'd been looking over his shoulder for the last five years, it was a comment about how the 2013 PACE trial results and their controversy had sucked all the oxygen out of the room during that period, forcing them to look backward and making it...

It is possible to do a documentary on the potential of a scientific breakthrough. You give the background/history of the subject in question. You interview scientists/researchers on the approaches they are developing and why they think they will work. You highlight the controversy and the...

I don't like to speak ill of the dead, but can you imagine this happening under the tenure of the CDC's Dr. William Reeves (who unexpectedly died in the summer of 2012) ? To quote German physicist Max Planck, "A new scientific truth does not triumph by convincing its opponents and making them...

It's interesting that about half of the faculty connected to this conference (several from Germany) seem to specialize in "Psychosomatic Medicine." Apparently the term "psychosomatic" is so loaded that the American Board of Psychiatry and Neurology (ABPN) no longer offers board certification...

There was an article about this today in USA Today (10/08/18). In the last four years, the CDC has received 362 reports of acute flaccid myelitis (AFM) cases. https://www.usatoday.com/story/news/nation-now/2018/10/08/rare-polio-like-disorder-sickens-6-children-minnesota/1563295002/

I think I dreamed I was at this conference...

There were 9 suspected cases in children (1 to 18) in Denver, Colorado in August/September 2014, according the Wikipedia article on acute flaccid myelitis. By October 2014, 100+ cases had been reported across the US.

A couple of weeks ago, I was trying to come up with some alternative name for ME/CFS that did not involve "fatigue" or "exhaustion." The problem with those words is that they are predicated on "exertion." Although people with ME worsen with exertion, my experience with ME is one of being in a...

I hope the symposium winds up on Youtube. The recorded Livestream still takes up too much bandwidth - probably due to compression, or lack thereof. I can see 720p videos on youtube, but this Livestream version plays for 3 seconds, waits for 5 seconds, plays 3 seconds, etc...

I don't know how common this is, but, when my "dizziness" was at its worst, my vision would sometimes appear to be tilted maybe 5~10 degrees clockwise. It was most noticeable when walking down a hallway. It may have had something to do with my eyes not converging correctly, but I'm not sure...

Back in the mid 1980's, on a doctor's recommendation, I took L-tryptophan for sleep once - and only once. That night, I had the weirdest dream experience of my life. It was like I was rapidly shifting between random images - fragments of dreams which only lasted a second. The worst aspect was...

This is like saying that there's little documentation that the blind are visually impaired. After all, studies show that their TV's are on more often than those of sighted people!

Speculation ahead: Fluge and Mella thought that it was the concentration of some unknown factor in the blood ("X") that produced symptoms. Below a certain concentration of "X" in the blood, symptoms abated. They reasoned that the patients who responded most quickly to Rituximab were those whose...

Even if the test turns out just to be for non-specific brain inflammation, it would show that ME patients have such inflammation, which would still be a big deal in world where people claim that ME patients can exercise their way to health.

It was a small study, "15 ME/CFS women and 15 age and sex matched healthy controls," but... If this hold's up, it will be a biomarker. That alone would probably qualify it as the most important discovery in ME/CFS... ever. And that could change everything.

Apparently, a healthy adult creates 50 to 70 billion cells per day just to replace those lost due to normal attrition. If you've ever seen those Inner Life of the Cell videos on youtube, you get some idea of how much activity is going on in a single cell (albeit requiring only minute amounts of...