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Somebody with ME was excited by this on Twitter https://insight.jci.org/articles/view/124714 Research ArticleClinical trialsNeuroscience Free access | 10.1172/jci.insight.124714 Epstein-Barr virus–specific T cell therapy for progressive multiple sclerosis Michael P. Pender,1,2,3 Peter A...

It contains some criticisms of the ME-ICC criteria: 2011 International Consensus Criteria paper: --- 2012 International Consensus Primer:

A study published this year i.e. subsequent to this paper, is a good example to cite to make this point. https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0197811

These 8 had answered no to the following question:

Jason LA, King CP, Richman JA, Taylor RR, Torres SR, Song S. US case definition of chronic fatigue syndrome: Diagnostic and theoretical issues. Journal of Chronic Fatigue Syndrome. 1999; 5:3–33. doi: 10.1300/J092v05n03_02.

From 2015 but I only read it recently: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4295644/

Very useful to have such summaries, I think. Regarding the following: Twisk didn't do his own survey, he just referred to the results from a paper published in 1990:

Free full text: https://www.nature.com/articles/s41467-018-07019-x

No mention of one or two physicians so they presumably have been picked.

I remember around a decade ago, Dr Ros Vallings, giving the impression to people in New Zealand that Japan was spending something like $50 million on CFS research, and that the country (New Zealand) shouldn't focus too much on raising money for research and concentrate instead on other things...

I remember seeing one or more CFS studies on children and adults from Japan, which suggested the prevalence there was higher than most of the figures that had come from other countries. It seems plausible to me that CFS might be more prevalent, where people have less chance to rest when they...

It’s over 8000 adults use the services each year according to this paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3665909/ so many more would use them during their illness. And it’s questionable to use the 125,000 and 250,000 figures as not everyone is diagnosed. I am not convinced that...

Yes, I agree. I think that it would be hard for people such as Peter White and Trudie Chalder/Simon Wessely to set up bases like they did in Barts and King's in a health system where there are co-pays where consumers pay some or all of the costs. Too many patients would have voted with their...

By the way, ME/CFS advocates made one or more submissions to have NICE guidelines for ME/CFS around 2004. For example, a Welsh group put in an application. I always thought it wasn’t a good idea as NICE is partly a rationing body and it should have been clear it would recommend against lots of...

This came up on a Google Scholar search. I'm suspicious of it but haven't read it. It's only a blog, not a published paper. Just in case is of interest to somebody.