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I'm involved in various awareness-raising initiatives aimed at both the general public and health/medical professionals so thought there might be something of interest in this. Unfortunately, I found very little of interest and I imagine most people could find better things to spend their time...

Remain to be convinced. And as I think I said before, if we are to get effective treatments in ME/CFS, we most likely will need to get "Big Pharma" involved funding trials. Most trials of drugs, especially big trials, are paid for by big pharma. Small Pharma couldn't afford to run sufficient...

I was a little frustrated when I first read about the response rate in phase 2. However, it was only the 4th visits that participant 1 and participant 3 missed. It looks quite likely that if the study went on longer they might have been able to be accommodated.

The group that didn't satisfy either the Fukuda or the Canadian criteria were an odd group: I'm not sure how they managed to get into the study. Anyway, I don't think one can say from this that there are loads of people saying they have with severe ME who don't have it upon examination.

I found this a little interesting. Most studies don't give such information:

This looks like a terrible return rate. However, there were 2 different cohorts: 38 of these 58 people returned questionnaires, which is actually not bad (66%). 425 questionnaire packs were sent out by ME North East, but only 25 were returned.

Interesting. A person I know had the test under Byron Hyde and there was something about cognitive exertion before it. I think it was to ensure you did cognitive exertion before it (possibly the day before it) to get a positive test. The patient wasn’t sure how to do this and not relapse. Byron...

You can ask questions at the end.

I agree. I'm left wondering if some people think it is a fait accompli that we will get decent sums (say a million or more) for biomedical research each year from the MRC. We may do so, but it doesn't look in any way certain to me. Based on what he said, it looks like it would be hard for him...

Why is that? I don't follow the general literature so have no idea. [Aside: a number of years back, I asked a radiologist relative about using SPECT scans. He said it would take him 40-45 minutes or so to set them up, which would not be very practical for busy radiologists]

Well, he claims that ME can be definitively diagnosed with brain scans, but I remain sceptical until I see the data. I'm afraid I am sceptical of a lot of what he says.

At least over the years Nancy Klimas has published a lot of papers, unlike someone like Byron Hyde who almost never seems to knuckle down and write papers. And I hear that Byron Hyde takes long periods off to write fiction, so it's not as if it will be impossible for him to find the time.