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Given what we have is ME/CFS, that should probably be our chief focus. Quite a lot of biological ME/CFS studies have only involved female patients; by contrast, not many that I recall only involved male subjects. I have heard few people complain about this.

Psychiatry could be described as psychology applied to medicine. The term psychological medicine is sometimes associated with psychiatrists.

These are the results from a 2014 study. Admittedly, only the Fukuda criteria were used. But I tend to believe that by the time one looks at research cohorts which weren't chosen from random digit studies, most of the patients probably have ME. So based on this, I would be cautious about making...

This is a continuation of the last post with more information on the citations: The full text for this is available at: https://sci-hub.tw/https://doi.org/10.1016/j.clinph.2004.05.012 The full text is available for free here...

If something is going to be a mandatory test, I hope the test is good especially at an individual level. Average differences don't necessarily mean that there are thresholds that have good sensitivity and specificity. For example, it is not argued that men on average are taller than women. But...

I previously thought that the postinfectious syndromes following bacterial infections might be different. However, reading descriptions of those who had Giardia l., they sound very ME-like to me , e.g. as discussed in this paper

I think Raison or Miller might have been the principal investigator https://www.ncbi.nlm.nih.gov/pubmed/?term=Miller+AH[Author]+Fatigue+interferon-alpha https://www.ncbi.nlm.nih.gov/pubmed/?term=Raison[Author]+Fatigue+interferon-alpha Another name that rings a bell is Lucile Capuron

The CDC CFS program previously funded research looking at fatigue induced by interferon-alpha.

I think this was mentioned in one of the teleconference calls and/or perhaps at the CFSAC. I think the main purpose may be to look at incidence and prevalence? Though like lots of ways of looking at the issue, some people with the illness may be missed.

Perhaps of interest to somebody Found by Dr. Marc-Alexander Fluks

In June, which I believe was after he set up the GoFund page, he was doubting that diagnosis. See the tweets I collated here: https://www.s4me.info/threads/netflix-afflicted-me-included.5321/page-6#post-96980 https://www.s4me.info/threads/netflix-afflicted-me-included.5321/page-6#post-96981...

One of the participants of the documentary Afflicted is now fundraising so he can go to the Mayo Clinic: As I recall, he appears to have CFS-type symptoms.

Goldsmith, one of the PACE trial statisticians, did her PhD on the data. On the one hand, this makes her vulnerable: she doesn’t want to be excluded from the project. On the other hand, she probably spent more time thinking about the data than a lot of statisticians do with a lot of data sets.

Okay thanks. I suppose that would be literally true. But the PACE Trial investigators may have used some licence to avoid having to release the data and simply meant that recovery criteria data would be published.

I'm afraid I don't understand that reasoning?

I remember the job ad specified a salary of £35,000-£40,000 so at least a fairly low salary for a CEO.

That reminds me that in the first Cochrane review of exercise therapy, Peter White is thanked for giving advice. I think there is a good chance he may have biased what they reported.

Yes, in my country on means-tested sickness and illness payments you don’t get any credits towards a pension. I’m not convinced the MUS moves are connected to the DWP though I could definitely see a private disability insurance company wanting to reduce their liabilities in whatever way they can.

(Minor point) I wonder if this is the correct reference. It sounds like she's making a CFS-specific point.