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  1. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    I've never heard that complaint before about the SF-36 physical function subscale. I don't remember such a comment from the Cochrane review, but it was a long document and my memory is not so good.
  2. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    I presume this might be happening in other clinics in England i.e. that the Minimum Data Set is not being used any more.
  3. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    I'm no expert on how sex might be discussed. But at the same time a lack of sex/intimacy may lead to relationship breakdown. Sometimes there are workarounds that might help couples if they were aware of them, though still the frequency will be likely a lot less. Also, some people may not feel...
  4. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    The paper does highlight how the illness affects quality of life in many ways, so I suppose it is useful that way though not new to most of us here.
  5. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    Seems reasonable, though I suppose it's going to be hard to find a questionnaire that asks everything and at the same time is not very long.
  6. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    Sounds too much like Quality of Life scores could be changed by changing attitudes, goals, et cetera.
  7. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    The sentence started well but I question it has been proven the cognitive difficulties are related to sleep disorder.
  8. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    Interesting. It can be frustrating with most questionnaires where you can't add comment.
  9. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    I've started a thread on this paper: https://www.s4me.info/threads/expecting-a-good-quality-of-life-in-health-assessing-people-with-diverse-diseases-and-conditions-using-the-whoqol-bref-skevington-mccrate-2012.5721/
  10. Dolphin

    "Expecting a good quality of life in health: assessing people with diverse diseases and conditions using the WHOQoL-Bref" (Skevington & McCrate, 2012)

    One of the conditions looked at was CFS. This doesn't seem to have been cited much in the CFS literature Free full text: https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.1369-7625.2010.00650.x Health Expect. 2012 Mar; 15(1): 49–62. Published online 2011 Jan 31. doi...
  11. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    WHOQOL Brief was used in this study. Again this rarely gets cited.
  12. Dolphin

    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    I don't recall this paper being cited or referred to much so I have started a thread on it. https://www.s4me.info/threads/quality-of-life-of-patients-with-chronic-fatigue-syndrome-van-heck-de-vries-2002.5719/
  13. Dolphin

    "Quality of Life of Patients with Chronic Fatigue Syndrome" (Van Heck & De Vries, 2002)

    2002 study that doesn't seem to have been cited very many times, most likely because of the journal it was published in, which was not PubMed-listed. https://www.tandfonline.com/doi/abs/10.1300/J092v10n01_03 Journal Journal of Chronic Fatigue Syndrome Volume 10, 2002 - Issue 1 Original...
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