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If they are very sick with the illness all the more reason to donate to the cause. Some could be too poor alright. Edited to add: Though others were married and didn't seem to be particularly poor. Some would sometimes get in touch again after they had a setback.

I have sent maybe eight thousand letters on behalf of an ME/CFS group to former enquirers to the group including people who attended meetings plus some lapsed members. Most of these letters were sent 10+ years ago when few people would have been donating to groups in other countries particularly...

A potential problem is people might not have all the diagnoses they should have. I was diagnosed first with IBS. I had ME/CFS at that stage but not the diagnosis. Also the definition of Fibromyalgia has widened with the 2010 criteria which don't require a tender point evaluation. A lot of...

Now:

via https://cfsme-registry.info

Thanks to everyone who have made this such a great forum its

Study by Brian A. Fallon Clin Infect Dis. 2014 Dec 15;59(12):1705-10. doi: 10.1093/cid/ciu703. Epub 2014 Sep 2. A comparison of lyme disease serologic test results from 4 laboratories in patients with persistent symptoms after antibiotic treatment. Fallon BA1, Pavlicova M2, Coffino SW3...

I hope the Lyme (and related)-community starts focusing more on donating/fund-raising for research. It should move the field on. I have rarely seen talk about fund-raising events for research or even calls to donate to research (though I only dip in and out of fora).

The A level issue would likely affect both arms of the trial to a similar extent. They could also have reported sensitivity analyses where the data was looked in different ways e.g. excluding those doing A levels.

http://tidsskriftet.no/en/2017/12/debatt/tenuous-link-between-chronic-fatigue-syndrome-and-pyruvate-dehydrogenase-deficiency/kommentarer Chronic fatigue syndrome and pyruvate dehydrogenase function 13.12.2017 Karl Johan Tronstad, Øystein Fluge, Olav Mella We appreciate the comments, but...

Aside: I hadn't seen "goulash" used in this way before so I googled "goulash meaning". Didn't like the second entry I saw [urban dictionary]!

From: Cort Johnson ---

Mike O’Brien MP, Minister of State for Health at All Party Parliamentary Group on M.E. held at 3.15-16.45 pm, Wednesday 2 December 2009 Committee Room 11, House of Commons

Thread: https://www.s4me.info/index.php?threads/interview-with-neuroscientist-michael-vanelzakker-vagus-nerve-me-cfs-latent-infection-and-more.1425/

Donation link: https://because.massgeneral.org/campaign/support-myalgic-encephalomyelitis-chronic-fatigue-syndrome-research-at-mgh/c153689

This thread has been split from here. CDC-funded study: BMJ. 2006 Sep 16;333(7568):575. Epub 2006 Sep 1. Post-infective and chronic fatigue syndromes precipitated by viral and non-viral pathogens: prospective cohort study. Hickie I1, Davenport T, Wakefield D, Vollmer-Conna U, Cameron B, Vernon...

Split from here. Health Psychol Behav Med. 2014 Jan 1;2(1):41-51. Predictors of Post-Infectious Chronic Fatigue Syndrome in Adolescents. Jason LA1, Katz BZ2, Shiraishi Y3, Mears CJ4, Im Y5, Taylor R6. Author information Abstract This study focused on identifying risk factors for adolescent...