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  1. Snow Leopard

    Energy Conservation Management for People With Multiple Sclerosis–Related Fatigue: Who Benefits? (Blikman et al, 2019)

    Basically questionnaire answers were correlated with questionnaire answers. The mistake the researchers are making is assuming these questionnaire answers are not biased.
  2. Snow Leopard

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    They most likely will still publish something even if it is a null result. (which wouldn't surprise me, unfortunately)
  3. Snow Leopard

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    This is what she said on the SMC site: "The gains for patients in this study do seem solid, however, I am still rather uneasy because while the patient allocation and statistical analysis of the trial appear to be done to a high standard, the intervention that was assessed is commercial and...
  4. Snow Leopard

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    One thing that I'd like to point out to anyone wishing to write a retort: Try to avoid making your reply about ME or CFS. It is not just about us. My second piece of advice is to not debate them on their (biased) terms. They wish to characterise the argument around the controversy of explained...
  5. Snow Leopard

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Right. "illness without disease" is nonsense. If one does not believe in any sort of magical mind-body dualism, then there necessarily must be demonstrable pathology. Even in say, behavioural disorders, there is still pathology within the body. Anything else is dualism.
  6. Snow Leopard

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Yes, it is important to consider their mindset. Psychiatrists consider the mind most important, that is to say the most important thing is to have the patient to say they are better (at least somewhat). It does not matter if the patient is still ill and that their thoughts saying they are...
  7. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    Gather a lot more data about the practises, attitudes, knowledge and patient outcomes in standard practise (in a way that doesn't allow those physicians to report in a deceptive way). I'm proposing a lot more study of physicians themselves. Physicians should be experimented upon, not just patients.
  8. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    from: racpcongress com.au/speaker/ms-megan-mcewen/ www racp edu au/docs/default-source/events/congress-2019-presentations/racp-tues-7-masterclass.pdf?sfvrsn=619a181a_2 www meganmcewen co nz https://web.archive.org/web/20190130090302/https://www.meganmcewen.co.nz/what-is-cfs...
  9. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    Here is the "latest thought from Europe": https://www.sciencedirect.com/science/article/pii/S2213158219301482 The above review shows a striking lack of evidence of markers in the brain that are constant across functional disorders. I also think there is clear bias in the brain regions he has...
  10. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    He uses those in the same way as SW: It's others describing such patients as those things, honest! I'm the one with the empathy for patients and telling patients their illness is real!
  11. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12136294 https://www.nzherald.co.nz/index.cfm?objectid=12173126 "Managing Difficult Encounters Chris Kenedi M.D." http://www.gpcme.co.nz/pdf/2016 North/Thur_Room7_0830 Difficult pt and the brainGP CME 2016.pdf
  12. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    My sympathy disappears when I discovered that most GPs don't bother regularly reading any peer reviewed research at all. I have asked doctors in many different social contexts and they all give the same answer - only doctors who do research, subsequently read research regularly. These GPs...
  13. Snow Leopard

    A general thread on the PACE trial!

    Yes, but not enough on its own. If she then reported that she had to spend the rest of the week in bed, it wouldn't exactly be considered a success.
  14. Snow Leopard

    Trial By Error: The Lightning Process Is “Effective”? Really?

    War, violence, poverty, illness. None of it is a problem if we choose not to care. ;)
  15. Snow Leopard

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    It's not a waste of time, it does not detract from the other problems unless we let it distract us.
  16. Snow Leopard

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    One topic that seems to be doing the rounds is the idea that because the symptoms are now potentially explained by CCI that people with this illness never had "real ME". I think this is a distortion of what most people were saying and it is damaging to perpetuate these accusations. Those...
  17. Snow Leopard

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    June 13th Editorial Biopolitics, psychosomatics, participating bodies - Monica Greco https://mh.bmj.com/content/early/2019/06/13/medhum-2019-011717 This is part of the overall project: www dot crassh.cam.ac.uk/events/26189 Still no sign of Sharpe...
  18. Snow Leopard

    Cognitive Impairments in Fibromyalgia Syndrome: Associations With Positive & Negative Affect, Alexithymia, Pain Catastrophizing.., 2018, Duschek et al

    The study is notable for making hundreds of statistical comparisons without using any sort of corrected alpha... https://en.wikipedia.org/wiki/Multiple_comparisons_problem They acknowledge it, but didn't bother to fix the problem... Amateur hour anyone?
  19. Snow Leopard

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    For balance (balancing out all the years of all-male panels), he should resign and adopt a 100% women panel policy in the NIH for a few years. ;)
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