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Times article responses 219, mostly supportive

Times article Comments at 183 Suggestions that research should be into cancer instead are there but seem to be very brief by one person . Liz22 17 HOURS AGO He is going to use funds to “further the interests” of a quarter of a million people in the UK who until now have had the dreadful...

Another popular one - responses still coming, now 139 Taliya 11 HOURS AGO The Epsteein Barr virus and Glandular fever are big culprits. The medical profession still have little understanding of what triggers problems with the immune system or what causes autoimmune diseases. The medical...

I used @Lou B Lou 's link in post #113 and got straight through to the article and comments. After a conversation, I think Mr B took up a free subscription offer and logged me into it which is probably why I can access the comments. I think it was a free month offer. Not sure that copyright...

Link to article in the Times. Lots of comments underneath, most ( not all) sensible and some very well informed. Sean O'Neill has engaged. Excellent comment by Nina Muirhead. Are we on the way to changing the narrative? I can only hope...

Abstract from NIH study #871

NIH has published some results of vaccine neuro reaction study. I have a link on my fb page which opens normally but I can't get it across here. I'll try another way and edit it in if successful. Not yet read. edit...

Thanks @Andy for the reminder. I have contacted my MP belatedly. I'm struggling to keep up. I have written to him frequently recently: so much is happpening.

Moved post Brian Vastag has published a series of tweets in last day or so on an article from NIH study Cannot get link onto here nor do I tweet. Will have another go and add it in an edit if I have any success. eta: https://www.acpjournals.org/doi/10.7326/M21-4905. Focus is on medical...

You could be describing my bedtime experience @Michelle, apart from the autumn pattern. I just have such problems sleeping- have tried everything you describe even the modified sleep hygiene which doesn't work. Calming music, boring books etc. Never get 7-8 hours of uninterrupted. A good night...

I slept through Woman's Hour because my sleep pattern is all over the place at the moment but have just listened on iplayer. It is at the beginning of the programme 0-22 minutes. I can't really find words. It was a superb piece. Thanks to Sean for his bravery. He speaks as well as he writes- so...

Pleased to see my MP, Sir Ed Davey ( Libdem), in support of the EDM. As party leader (albeit of a small party) I know his time is now more pressured especially with seats in the House to win. Grateful for his ongoing help.

It is good to see some Forward ME minutes but I think it would have been helpful if there had been a bit more detail. I got a bit confused and the severe brain fog doesn't help. For example there has been a lot of change of personnel recently and it would be useful to know which organisations...

I don't tweet unfortunately but do subscribe to the Guardian. Have been feeling very cross at their lack of coverage. Once again it looks as if I will be changing my subscription back to the Times with a letter to the Guardian saying this. But where do I get the energy? I don't know why they...

I agree. I know many on this forum have tried to interest their MP without success but with persistence I think much can be achieved. Of course persistence takes energy which is what most pwme do not have. Sometimes I need to be involved via dictation to Mr B because I simply can't write. For...

Jerome Burne has written some good articles for the Mail on ME/c fs. This was written by a Jonathan Rose for the Mail Online. If you google his name he is described as a trainee reporter and has Muck Rack after his name- no idea what this refers to. He's written on a number of topics in the...

Is anyone in touch with Alem Matthees? Can someone send him the statement?

Rapid response by Derek Enlander to an article by Strauss in the BMJ (2002). I think Dr Enlander is now mostly retired but others might know more. Caring for patients with chronic fatigue syndrome BMJ 2002; 324 doi: https://doi.org/10.1136/bmj.324.7330.124 (Published 19 January 2002)Cite this...

https://recovercovid.org/funding Has there been research showing that new onset diabetes is a sequela to covid? Funding opportunities available for this and other sequelae.

Tweet from @Wilhelmina Jenkins p Wilhelmina Jenkins @minadjenkins Replying to @jspotila and @NINDSdirector If, as Dr Nath has suggested, there are serious recommendations for clinical trials coming out of the intramural study, there has better not be one word from NIH about not funding...