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I donated a while back. 5 days left, 25% of the target to go. I appreciate David sticking with us all this time, and not transforming from a 'help' to a 'hindrance' in the way that a number of our prominent advocates seem to do. He's been steadfastly useful. :) Here's to another year.

Some posts discussing possible journalists who could cover the story have been removed as off-topic

That is interesting reading. Ramsay is very clear though that there is an actual disease though. He talks of emotional lability with some patients having hysterical weeping (by which I think he means uncontrollable weeping out of proportion to any cause), but he is not supporting the idea that...

From the link above: Understanding ME/CFS The call “ME/CFS 2024 - Understanding ME/CFS” invited researchers in Vienna who seek to conduct a cutting-edge research project (15 months max.; max funding per project € 100,000) that aim to advance our understanding of etiopathogenesis, diagnostics...

Yeah, throwing the dice and keeping track of the scores is way too much bother. Instead, people can just say what square they think they are on. And, it's always possible to chop off part of the board. If things are going a bit slow, instead of a target of 100, make it 65.

WHO Press conference 30 October 2020 So, in 30 October, Garner said that he had begun to improve two weeks ago.

From a post earlier in the thread, Garner quoted in December He was in Grenada in November. .

Edit to add: September 29 Paul Garner and colleagues describe how a self-help pacing group has helped them manage their long covid

Oh. Thank you.

https://www.unibooks.co.nz/index.php?route=product/product&product_id=180802 Excerpts from a promotional blurb about the book, bolding mine: 'The best thing you'll read this year' KILEY REID 'So beautiful' SARAH JESSICA PARKER 'One of those books I will read again and again' JOJO MOYES 'Moving...

I should not have been so definitive; I'm surprised at myself for doing so. Very few things about ME/CFS should be said definitively and I've certainly over-stated things here. It is something I experience and I see it in my son. I can feel PEM come on as my eyelids get puffy. I've seen it in...

There was an interview with Kate Weinberg on New Zealand radio this morning. https://www.rnz.co.nz/national/programmes/saturday/audio/2018961495/kate-weinberg-finding-the-funny-side-of-invisible-illness She notes that she is much better but is not fully recovered. The book might be good, but I...

That is one explanation for me being tired and pale in the morning.

Prevalence, risk factors, and impact of long COVID in a socially vulnerable community in Brazil: a prospective cohort study, Azambuja et al., 2024

Long Covid in Nigeria A systematic analysis of neurologic manifestations of Long COVID in Nigeria, 2024, Akase et al.

George Monbiot: "I really hope this isn't about ME/CFS - again. The "silencing" story around this illness has a. been inflated beyond recognition b. been used for the past 13 years to protect bad science from effective scrutiny...

Pot, kettle. There is so much irony in that piece. They really don't seem to see that the people they support have a hypothesis at least as poorly founded as Kell et al, and have imposed a treatment regime on the very people that these authors claim to be concerned about. I am interested...

suicide rate per 100,000 people

From ATP9A deficiency causes ADHD and aberrant endosomal recycling via modulating RAB5 and RAB11 activity

An interesting watch. Related to this, an Icelandic doctor who has a son with ME/CFS has joined the board of IACFSME. More here: International: IACFS/ME - International Association for CFS/ME, IACFSME