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Paper has now been published in The Lancet Regional Health Europe https://www.thelancet.com/journals/lanepe/article/PIIS2666-7762(23)00143-6/fulltext#%20.

Getting close to 2500 signatures now :) Can someone tell me how the change.org petition can be used? Can signatures directly be added to the Open Letter or will it be rather a matter of quoting this petition in the letter?

Yes, something along those lines. It could also be very possible that the sum ends up being smaller due to budget cuts (sort of how Lauterbach promised 200 million for healthcare research into Long-Covid, but that became 40 million because Lindner restriced the budgets and he couldn't make it...

From what I can tell it is more complex and the sum has the theoretical potential to be a lot higher. The sums mentioned are the upper limits per project. So hypothetically it would be possible to have 10 different projects on fundamental research all receiving 55 million Euros, the same...

All of these studies have been published by van Campen and Visser after Vermeulen presented his results: https://www.scirp.org/journal/paperinformation.aspx?paperid=98389 https://www.mdpi.com/2227-9032/8/3/192 https://www.mdpi.com/2227-9032/9/6/683 https://www.mdpi.com/2227-9032/9/6/682

I think it's fair to assume that Scheibenbogen will have shared these news with all her ME/CFS researching colleagues already. I hope it will also be able to reach far beyond the usual ME/CFS researchers. Something like a 40million grant in the hands of a new researcher that brings a new team...

Guideline for the funding of interdisciplinary collaborations for research into the pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Federal Gazette of 01.09.2023 https://www.bmbf.de/bmbf/shareddocs/bekanntmachungen/de/2023/09/2023-09-01-Bekanntmachung-ME-CFS.html...

I can understand that, but this type of stuff doesn't really take very long nor does it require any funding. Someone writes it up and the others read over it. I definitely much prefer biomedical studies as well, but even these studies can have an impact, albeit very small.

It's nice to see all the "big" Long-Covid researchers like Iwasaki, Deeks, Henrichs, Ely, Wherry, Peluso et al, come together and put their name behind this paper. I'm sure this paper will be cited hundreds of times. Let's hope it also has proper implications.

SARS-CoV-2 reservoir in post-acute sequelae of COVID-19 (PASC) Abstract Millions of people are suffering from Long COVID or post-acute sequelae of COVID-19 (PASC). Several biological factors have emerged as potential drivers of PASC pathology. Some individuals with PASC may not fully clear the...

Presence of SARS-CoV-2 in middle ear fluid and characterization of otitis media with effusion in COVID-19 patients Highlights The role of SARS-CoV-2 in OME is currently unknown. Eighteen out of 27 MEF specimens of COVID-19 group tested positive for SARS-CoV-2. The presence of SARS-CoV-2 in MEF...

Yes, one certainly shouldn't rely on a single team, especially considering that this doctor is very controversial or at least partially discredited. At the same time one may not forget that it was to a large degree him and his colleagues (van Campen and Visser, who aren't controversial at all)...

Taken from https://me-pedia.org/wiki/Two-day_cardiopulmonary_exercise_test: "In a 2018 presentation,[23] Ruud Vermeulen reported to have data on approximately 500 ME/CFS patients who performed the repeated CPET procedure. He stated the test on the second day did not show any difference in...

Thank you for the response. A bit dissapointing that Hand grip strength, which played a bigger role in her new study as prognostic marker...

For the immunologists on this forum: Can anybody explain a more precise hypothesis why exactly Obinutuzumab is what Scheibenbogen is planning to accompany her Immunadsorption study with? From what I've understood Obinutuzumab is something like "the new Rituximab", with possibly some advantages...

SARS-CoV-2 Spike amyloid fibrils specifically and selectively accelerates amyloid fibril formation of human prion protein and the amyloid β peptide Abstract An increasing number of reports suggest an association between COVID-19 infection and initiation or acceleration of neurodegenerative...

Now that's funny. Didn't patients have to come up with the name Long-Covid because it was a new phenomenon nobody knew of and nobody was writing about, a community of patients meeting on Twitter? Did they believe in a disease that they didn't believe in? Now that news and scientists have started...

OMF funded study, for more information see: https://www.omf.ngo/HSE-publication/

Temporal pathway analysis of cerebrospinal fluid proteome in herpes simplex encephalitis ABSTRACT Objectives: We examined the temporal changes of the CSF proteome in patients with herpes simplex encephalitis (HSE) during the course of the disease, in relation to anti-N-methyl-D-aspartate...

A lot oft the big newspaper agencies have written something about the study. Science also wrote a piece https://www.science.org/content/article/clotting-proteins-linked-long-covid-s-brain-fog.