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I couldn't agree more. I have absolutely no problem with their project, it's great to see it and fantastic that they received funding for it. The problem is presenting often very vague hypotheses or ideas as facts, sometimes even clearly wrong things as facts and even doing so with a "Dr." in...

Sure. Here it is:

https://sci-hub.wf/10.1136/bmj.h2087

Currently no information. Both Rob Wüst and Jeroen den Dunnen are somehow a bit involved in this bachelor student gimmick project. Jeroen den Dunnen has found some kind of autoantibodies associated to Long-Covid and has received a grant to study these in ME/CFS...

The ARD in Germany, which is something like an equivalent of the BBC in the UK, did a documentary on Long-Covid https://www.daserste.de/information/ratgeber-service/hirschhausens-check-up/sendung/hirschhausen-und-long-covid-100.html which also included a recent follow-up...

I think it's important to emphasize that this is not a collaboration of researchers. These are bachelor students who've just started their studies and were given the chance to "play around a bit".

I agree that, that is the argument proposed by the OMF or by patients. However, if that were the case it would in my opinion be very unethical. If you have a solid biomarker, which is something you know for certain after 4 years, you put all your efforts into that. Engineers aren't...

Original title in Dutch: Studenten onderzoeken het effect van immuunsysteem Long-COVID-patiënten op spiercelfunctie...

The details of mechanisms being described here are way over my head. To me it is very clear that the nanoneedle has flunked. They published on this potential biomarker 4 years ago. Nowadays, the OMF is funding projects that are looking for biomarkers in ME/CFS and Long-Covid. One doesn't waste...

Here's the new pre-proof version: https://www.sciencedirect.com/science/article/pii/S2213231723001970. Are we sure Scheibenbogen's team is connected, I can't see any connection? Patients were recruited from the Parkstad Clinic in Amsterdam, what is this? I can only find a dermatologist with...

Would such a psychologist exist that overshadows Wessely and is as invested in him in the topic? I don't think so. We're basically saying that a knighted and world-wide leading psychologist, head of his departement, former president of the Royal Society of Medicine, Fellow of the Royal Society...

Quite interesting work from a group looking at slighty different things than all other groups. Good to see.

Overall Merel Hellemons makes a great impression on me. It's great to see that Hellemons was part of the recent evaluation of the Knoop CBT for Long-Covid trial https://academic.oup.com/cid/advance-article-abstract/doi/10.1093/cid/ciad399/7210772. It's very dissapointing to see that the...

The Rosmalen paradox. I want to secure funding but unfortunately for me it is biomedical research: ME/CFS isn't a FND. I want to do my day to day research: ME/CFS is a FND.

I'm probably heavily biased since I don't belong to the mild/moderate group, but I wouldn't have a problem with a biomarker for severity. That would be an outstanding finding, if it indeed measures more than inactivity. Long-Covid patients haven't been sick for too long so a marker might not...

There were some decent visualisation of the data. Unfortunately, with Twitter down I can't find it. At the end of the day it is the order of magnitude that is deceicive. Whether the numbers are still slightly increasing or have stabilised is not too decisive if one sees how significant they...

I agree there are multiple difficulties and any assessement is hard and becoming increasingly harder to do in the future. However, that doesn't mean we should make up numbers. The numbers are significant enough already, they are gigantic! But the data I've seen, perhaps I've looked at the wrong...

Is the statement "our community is unfortunately growing larger and larger as the days pass." backed by data? The last data I saw, which is very hard to come across and definitely not too acurate, was that the number of Long-Covid patients had roughly stabilised with the number of recovering...

A year ago a small, yet significant in what it found, preprint emerged from this study https://www.s4me.info/threads/preprint-long-covid-is-associated-with-extensive-in-vivo-neuroinflammation-on-18f-dpa-714-pet-2022-visser-et-al.27980/. Unfortunately, it seems results didn't hold up at a larger...

Well it seems like I'm not the only one confused by the selection of patients. According to the above Tweet from Prusty either severe LC patients or HC are taken from the Charite, none of which is stated as such in the paper, or did I miss something (perhaps a LC & ME/CFS overlap that is...