Search results

I’ve not kept up with this thread recently so apologies is this has already been posted: BBC Radio 4, 11am Tuesday, 29 September: Long Covid, presented by Adam Rutherford: https://www.bbc.co.uk/programmes/m000mzms BBC Blurb: One of my concerns about linking long-covid with ME, is that it...

After my FT letter, I received an email from a scientist who told me that he was “attacked” by the KCL psychiatrists et al at a Royal Society of Medicine meeting in the 1980s. They claimed that his data could not be trusted because he was diagnosed with post-viral fatigue syndrome and he had...

My motivation for posting these questions was primarily to draw the issues to the attention of doctors who follow him on Twitter, and particularly to the 39 doctors who wrote to the BMJ. SW has not replied to any of my questions yet but his co-author, Prof Anthony David, has:

In the BMJ letter the 39 “doctors as patients” write: The above reminded my of Trisha Greenhalgh’s negative comments about ME/CFS patients in her BMJ article “Towards an institute for patient-led research”...

That is what I thought but I’ve not managed to follow the research as closely as I would like and I wondered if I had missed something. It is very frustrating and concerning to me when scientists present conjecture (and in some cases falsehoods) as facts. I don’t know if this happens more in ME...

The ME Biobank use a Tanita machine for calculating BMR (see: https://tanita.eu/help-guides/understanding-your-measurements/basal-metabolic-rate/). I've no idea how accurate or useful it is. I'm guessing that if low metabolic age had been a common observation in people with ME, and was deemed to...

From the Naviaux’s website: As a non-scientist patient this makes sense to me as a possible explanation for how I feel. What I am not clear about is how much is conjecture and how much is established scientific fact. Have Naviaux’s findings which suggest that ME/CFS is a “dauer-like metabolic...

Dr Byron Hyde surrenders his medical license (S4ME thread, August 2019): https://www.s4me.info/threads/dr-byron-hyde-surrenders-his-medical-license.10892/

@dave30th I don’t know if you’ve had a reply from Dr Ghebreyesus but I wanted to bring this thread to your attention, and particularly the information that @Dx Revision Watch has shared about attempts by different orgs to communicate with WHO in recent years. [Edit: link removed from my...

You could mention the CureME LSHTM study: https://cureme.lshtm.ac.uk/covid-19-our-work-thus-far/ The above article also references this study at the University of Leicester...

The Economist (free to read): When covid-19 becomes a chronic illness: https://www.economist.com/science-and-technology/2020/08/22/when-covid-19-becomes-a-chronic-illness Screenshots in case anyone can’t access:

Your comment has now been published on the site: https://www.evidentlycochrane.net/treatments-can-harm/ It will be interesting to see if Selena responds as she has below the other comment.

This letter in today’s FT took me all day to write and I suffered for the exertion but I hope it was worth it. I decided that it would have a better chance of being published if I didn’t name the KCL psychiatrist in question. When writing letters for publication it’s always a compromise...

I missed this gem the first time I read the FT article: I wonder if Dr Nicholson is aware that his KCL colleague and “expert in the field” once claimed: “we believe that understanding of the postviral fatigue syndrome has been hindered by doctors who suffer from the condition also researching...

FT article: Fatigue plagues thousands suffering post-coronavirus symptoms ‘Long-haul Covid’ has already become mired in controversy over causes and treatment https://www.ft.com/content/8a8c9630-7cce-417a-8732-f0589009be14 I managed to access this article for free by using an incognito browser...

https://www.theguardian.com/commentisfree/2020/aug/02/observer-letters-russian-meddling-is-at-the-heart-of-brexit

No surprise to see Dr Gerada congratulating her friend Claire Fox on her peerage and praising her “amazing work” and “honesty”. At least it wasn’t Fox congratulating Gerada or her husband.

Free access: Main article: Helen Salisbury: When will we be well again?: https://www.bmj.com/content/369/bmj.m2490/rr-0 Rapid Response from Williams, Muirhead and Pariente: https://www.bmj.com/content/369/bmj.m2490/rr-0 Rapid response from Michael Peel, GP...

Yes, that’s me. Thanks for sharing. I only just seen it. It is somewhat edited. It’s not a big deal but I didn’t write that CFS is “also known as myalgic encephalomyelitis (ME)”. My original letter only referred to ME/CFS so I understand why they felt the need to expand it but I wouldn’t have...

I sense that Debby Bogaert (professor of paediatric infectious diseases at Edinburgh University, who wrote a Guardian article on her experience as a post-covid “long-hauler”) may be on a similar journey of understanding to Prof Garner: Although I agree with Prof Bogaert, I’m not sure if she...