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On January 9th, over 200 journalists, researchers, physicians, and people living with Long Covid, Myalgic Encephalomyelitis (ME/CFS), and other infection-associated illnesses sent the following letter to the progressive publication, The New Republic, demanding extensive corrections and an...

Recent updates in autonomic research: a focus on new technologies with high-resolution procedures to study sympathetic nerve activity, plasma proteomic profiling and POTS, and non-invasive neuromodulation with focused ultrasound, 2023, Jaquie R Baker et al Neurogenic orthostatic hypotension...

Multiple sclerosis (MS) is a neuroinflammatory disease of the central nervous system (CNS). Although classically considered a demyelinating disease, neuroaxonal injury occurs in both the acute and chronic phases and represents a pathologic substrate of disability not targeted by current...

I don't think this is an accurate description of M.E though. Resting isn't going to prevent a person from developing M.E, chances are is that it could prevent them from becoming worse.

https://www.nature.com/articles/s41551-022-00999-8

This should also be advised to post-infectious COVID patients with little or no symptoms remaining.

Sophia Antipolis, 19 January 2023: COVID-19 is associated with higher risks of cardiovascular disease and death in the short- and long-term, according to a study in nearly 160,000 participants published today in Cardiovascular Research, a journal of the European Society of Cardiology (ESC).1...

Highlights Identified 45 pairs of viral exposures associated with increased risk of NDDs Replicated 22 of the viral exposures/NDD pairings• Replicated the previously reported Epstein-Barr and multiple sclerosis association• Follow-up shows significantly elevated risk of NDD years after viral...

Abstract Importance Understanding the factors associated with post-COVID conditions is important for prevention. Objective To identify characteristics associated with persistent post–COVID-19 symptoms and to describe post–COVID-19 medical encounters. Design, Setting, and Participants This...

20 yr ago, a tribute appeared in this journal on the 70th anniversary of an animal model of disseminated encephalomyelitis, abbreviated EAE for experimental autoimmune encephalomyelitis. “Observations on Attempts to Produce Disseminated Encephalomyelitis in Monkeys” appeared in the Journal of...

Video mentions ME/CFS from B.C, Canada Dr. Birinder Narang just after 2:52 minutes:

Summary: Diphenylbutylpiperidines (DPBPs), a older class of antipsychotic medications can effectively be repurposed to help treat type 2 diabetes, a new study reports. The mechanism Ussher and his team turned their attention to is succinyl CoA:3-ketoacid CoA transferase (SCOT), an enzyme...

Translation: Hello everyone, As agreed, I'll give you a feedback at the time of my monthly injection. I measure my condition every day with a tracking chart of my symptoms for pacing . I take this data to give you a cold feedback 1 month after each injection. I'm also developing an...

I'm one who gets viral reactivations (EBV or HHV6 or whatever) every 2-3 years that can increase my level of disability substantially for months. I feel these questionnaires do not understand chronic illnesses.

Experts are now saying that young healthy adults who have had at least 2 jabs no longer need booster shots. Do mild cases of Covid develop into LC?

Hormone replacement therapy is associated with improved cognition and larger brain volumes in at-risk APOE4 women: results from the European Prevention of Alzheimer’s Disease (EPAD) cohort, 2023, Rasha N. M. Saleh et al Abstract Background The risk of dementia is higher in women than men. The...

Oh Sarah, I thought you were playing a joke and that you healed with CBT :rofl: Glad it's fine now.

The M.E doctor I saw told me based on his 20- yrs experience that PVFS often resolves for most people after 2-3 years.